Dementia and Imagination: a mixed-methods protocol for arts and science research
Dementia and Imagination: a mixed-methods protocol for arts and science research
复制标题
痴呆症与想象力：艺术和科学研究的混合方法协议
作者：
G. Windle;A. Newman;V. Burholt;B. Woods;D. O’Brien;Michael Baber;B. Hounsome;C. Parkinson;V. Tischler
痴呆症与想象力是一项多学科研究合作，将艺术和科学结合在一起，以解决当前关于视觉艺术活动在痴呆症护理中的益处的证据局限性。研究的问题是：艺术能提高生活质量和幸福感吗？如果它确实有所作为，它是如何做到这一点的，为什么？它是否具有更广泛的社会和社区利益？方法和分析这项混合方法的研究招募参与者从住宅护理院，国家卫生服务（NHS）病房和社区在英格兰和威尔士。视觉艺术干预是在护理和社区环境中开发的，并以每周1×2小时的小组会议形式提供给N=100名痴呆症患者，为期3个月。 在3个时间点收集定量和定性数据，以检查对他们的生活质量的影响，以及照顾他们的人（N=100家庭和专业照顾者）的看法。在干预过程中（干预与控制条件）获得了对福祉的重复测量系统观察。卫生经济学部分对干预措施进行社会投资回报评估。在3个时间点收集定性数据（n=35护理人员/工作人员和n=35人患有痴呆症），以探索社会联系的变化。获得自我报告的干预交付结果（n=100）。焦点小组与干预参与者（n=40）探讨影响的看法。从艺术和医疗保健专业人士（N=100）的定量和定性数据的社会网络分析研究的看法和实践的变化。伦理和传播该研究由北威尔士研究伦理委员会批准。一系列活动将分享研究成果，包括国际和国家学术会议、季度通讯和项目网站。公众参与项目将面向广泛的利益攸关方。将编写政策和做法摘要。视觉艺术干预协议将作为一个免费提供的从业人员指南。
Introduction Dementia and Imagination is a multidisciplinary research collaboration bringing together arts and science to address current evidence limitations around the benefits of visual art activities in dementia care. The research questions ask: Can art improve quality of life and well-being? If it does make a difference, how does it do this—and why? Does it have wider social and community benefits? Methods and analysis This mixed-methods study recruits participants from residential care homes, National Health Service (NHS) wards and communities in England and Wales. A visual art intervention is developed and delivered as 1×2-hour weekly group session for 3 months in care and community settings to N=100 people living with dementia. Quantitative and qualitative data are collected at 3 time points to examine the impact on their quality of life, and the perceptions of those who care for them (N=100 family and professional carers). Repeated-measures systematic observations of well-being are obtained during the intervention (intervention vs control condition). The health economics component conducts a social return on investment evaluation of the intervention. Qualitative data are collected at 3 time points (n=35 carers/staff and n=35 people living with dementia) to explore changes in social connectedness. Self-reported outcomes of the intervention delivery are obtained (n=100). Focus groups with intervention participants (n=40) explore perceptions of impact. Social network analysis of quantitative and qualitative data from arts and healthcare professionals (N=100) examines changes in perceptions and practice. Ethics and dissemination The study is approved by North Wales Research Ethics Committee—West. A range of activities will share the research findings, including international and national academic conferences, quarterly newsletters and the project website. Public engagement projects will target a broad range of stakeholders. Policy and practice summaries will be developed. The visual art intervention protocol will be developed as a freely available practitioners guide.