Economic Impact of Terminal Illness and the Willingness to Change It
Economic Impact of Terminal Illness and the Willingness to Change It
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DOI：
10.1089/jpm.2010.0055
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发表时间：
2010-08-01
影响因子：
2.8
通讯作者：
Emanuel, Linda
中科院分区：
文献类型：
--
作者：
Emanuel, Natalia;Simon, Melissa Andrea;Emanuel, Linda
目的：收集有关终末期疾病对家庭经济影响的试验数据，以及培训护理人员作为遏制疾病相关贫困的方法的可行性。设计：探索性描述性研究，包括对患者和护理人员二人组的半结构化访谈。设置：印度特里凡得琅，喀拉拉邦，印度的帕拉迪纳印度姑息治疗诊所。参与者：2008年，11名患者-护理人员（22名个人参与者）访问印度帕拉迪纳。方法：经过培训的访谈者分别与患者和护理人员进行了面对面的访谈，包括114个问题。问题涉及疾病对家庭、家庭和个人的经济影响。问题包括，如果疾病已经影响到家庭，他们需要出售资产或显着减少工作和/或schooling.Results：所有的家庭报告说，病人不得不放弃工作，由于疾病。在七个家庭中，护理人员还必须改变工作习惯。所有受访者都表示，疾病迫使他们出售资产。有10个家庭报告说，他们的孩子因病不得不缺课。所有答复者都表示，如果有条件，他们将使用受过培训的护理人员来帮助减轻护理负担。九个答复者认为，使用受过训练的护理人员会减少或防止一些家庭的疾病有关的变化。九照顾者说，他们有兴趣成为一个训练有素的careful.Conclusion：这些数据表明，一个明确的研究是可行的，并会揭示多少援助照顾者培训可以借给家庭的社会经济韧性。
Objective: To gather pilot data on the economic impact of terminal illness on families and on the feasibility of training caregivers as a method of stemming illness-related poverty.Design: Exploratory, descriptive study involving semistructured interviews with patient and caregiver dyads.Setting: Pallium India Palliative Care Clinic in Trivandrum, Kerala, India.Participants: Eleven patient-caregiver dyads (22 individual participants) visiting Pallium India in 2008.Methods: Trained interviewers conducted face-to-face interviews consisting of 114 questions with the patient and caregiver separately. Questions covered topics of economic impact of illness on household, family, and individual. Questions included if the illness had so impacted families that they needed to sell assets or significantly reduce work and/or schooling.Results: All families reported that patients were obliged to give up work as a result of illness. In seven families, the caregiver also had to change work habits. All respondents stated illness had forced them to sell assets. Ten households reported that their children were obliged to miss school due to the illness. All respondents indicated they would use trained caregivers to help with the care burden if available. Nine respondents thought that use of trained caregivers would have reduced or prevented some of the household's illness-related change. Nine caregivers said they would be interested in becoming a trained caregiver.Conclusion: These data indicate that a definitive study would be feasible and would reveal how much assistance caregiver training could lend to household socio-economic resilience.