Identifiability and privacy in pluripotent stem cell research.
Identifiability and privacy in pluripotent stem cell research.
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DOI：
10.1016/j.stem.2014.03.014
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发表时间：
2014-04-03
期刊：
影响因子：
23.9
通讯作者：
Knoppers BM
中科院分区：
文献类型：
--
作者：
Isasi R;Andrews PW;Baltz JM;Bredenoord AL;Burton P;Chiu IM;Hull SC;Jung JW;Kurtz A;Lomax G;Ludwig T;McDonald M;Morris C;Ng HH;Rooke H;Sharma A;Stacey GN;Williams C;Zeng F;Knoppers BM
数据共享是研究的一个基本要素;然而，最近的科学和社会发展对保护隐私的传统方法提出了挑战。在这里，我们为确定人类多能干细胞研究的数据共享阈值提供了指导，目标是广泛的利益相关者，包括研究财团，生物储存库，政策制定者和资助者。
Data sharing is an essential element of research; however, recent scientific and social developments have challenged conventional methods for protecting privacy. Here we provide guidance for determining data sharing thresholds for human pluripotent stem cell research aimed at a wide range of stakeholders, including research consortia, biorepositories, policy-makers, and funders.