Youth and parent knowledge and communication about major complications of type 1 diabetes: associations with diabetes outcomes.
Youth and parent knowledge and communication about major complications of type 1 diabetes: associations with diabetes outcomes.
复制标题
青年和父母有关1型糖尿病主要并发症的知识和沟通：与糖尿病结局的关联。
DOI：
10.2337/dc11-0577
复制
发表时间：
2011-08
期刊：
影响因子：
16.2
通讯作者：
Buckloh LM
中科院分区：
文献类型：
--
作者：
Wysocki T;Lochrie A;Antal H;Buckloh LM
此前，我们研究了临床医生和父母对1型糖尿病(T1D)的主要并发症(MC)的教育内容、时间和方式的看法。结果表明，这一话题在年轻人和父母中造成了相当大的焦虑，人们意识到有必要根据每个患者的情况量身定做这些经历，并且对适当的MC教育的看法存在相当大的差异。以前的研究没有衡量年轻人或父母对并发症的实际了解，他们如何应对这些知识，或者这些变量与T1D结局的关系。目前的研究解决了这些差距。本文报告了151名8-18岁的青少年T1D及其父母的横断面研究，通过结构化访谈了解他们对MC(肾病、视网膜病变、神经病变和心血管疾病)的知识。关于MC的家庭沟通使用在本研究中验证的问卷进行评估。回归分析探讨了青年年龄、父母和青年MC知识，以及关于MC的积极家庭沟通作为预测T1D结局的因素(血红蛋白A1c、治疗依从性、生活质量和关于T1D的家庭冲突)。父母的MC知识与任何T1D结局无关；更多的青年MC知识预示着更好的治疗依从性。更频繁的关于MC的乐观家庭沟通与在所有结果上更有利的地位相关。对MC持乐观态度的家庭沟通，比MC知识更能预示良好的T1D结局。需要进行纵向研究来证实这些关联，并评估相关的心理教育干预措施。
Previously, we studied clinicians’ and parents’ perspectives about what, when, and how youth with type 1 diabetes (T1D) and parents should be taught about major complications (MC) of T1D. Results showed that this topic creates considerable anxiety among youth and parents, that there is a perceived need to tailor these experiences to each patient’s circumstances, and that there is considerable variability in opinions about appropriate MC education. Prior studies did not measure youths’ or parents’ actual knowledge of complications, how they cope with that knowledge, or how these variables relate to T1D outcomes. The current study addresses these gaps. This article reports a cross-sectional study of 151 8- to 18-year-old youths with T1D and their parents in which their knowledge of MC (nephropathy, retinopathy, neuropathy, and cardiovascular disease) was ascertained by structured interview. Family communication about MC was assessed using a questionnaire validated in this study. Regression analyses explored youth age, parent and youth MC knowledge, and positive family communication about MC as predictors of T1D outcomes (hemoglobin A1c, treatment adherence, quality of life, and family conflict about T1D). Parental MC knowledge was not associated with any T1D outcome; greater youth MC knowledge predicted better treatment adherence. More frequent optimistic family communication about MC was associated with more favorable status on all outcomes. Optimistic family communication about MC, more so than MC knowledge, predicted favorable T1D outcomes. Longitudinal studies are needed to confirm these associations and to evaluate pertinent psychoeducational interventions.