HEALTH-RELATED QUALITY OF LIFE IN INFLAMMATORY BOWEL-DISEASE - FUNCTIONAL STATUS AND PATIENT WORRIES AND CONCERNS
HEALTH-RELATED QUALITY OF LIFE IN INFLAMMATORY BOWEL-DISEASE - FUNCTIONAL STATUS AND PATIENT WORRIES AND CONCERNS
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DOI：
10.1007/bf01538073
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发表时间：
1989-09-01
影响因子：
3.1
通讯作者：
APPELBAUM, MI
中科院分区：
文献类型：
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作者：
DROSSMAN, DA;PATRICK, DL;APPELBAUM, MI
与健康相关的生活质量评估可能是了解慢性病经历及其对健康结果的影响的辅助手段。在这项研究中，我们评估了150例炎症性肠病患者(63例溃疡性结肠炎，87例克罗恩‘’S病)与健康相关的生活质量。我们使用了一种标准化的测量方法，疾病影响概况，以及我们开发的调查问卷，以引出并优先考虑IBD患者与疾病相关的担忧和担忧。我们的初步数据显示：(1)炎症性肠病患者在社会和心理方面比在生理方面经历的中度功能损害更多；(2)与溃疡性结肠炎患者相比，克隆氏病患者报告的心理社会功能障碍更严重；(3)炎症性肠病患者报告最担心的问题是手术、精力程度和身体形象问题，例如是否有造瘘袋；以及(4)与医生对疾病活动的S评分相比，功能状态和患者的担忧与其他健康状况和既往医疗保健利用的相关性更好。我们相信，测量健康相关生活质量(HRQOL)的问卷可以用于研究和患者护理，以扩大对IBD患者的临床评估。需要进一步的工作来确定HRQOL相对于疾病活动和其他以医生为基础的评估在预测健康结果中的作用。
The assessment of health-related quality of life may be an adjunct to understanding the chronic illness experience and its effects on health outcomes. In this study, we evaluated health-related quality of life of 150 patients with inflammatory bowel disease (63 ulcerative colitis, 87 Crohn''s disease). We used a standardized measure, the Sickness Impact Profile, and a questionnaire we developed that elicits and prioritizes the disease-related worries and concerns of patients with IBD. Our preliminary data indicate that: (1) IBD patients experience moderate functional impairment more in the social and psychological than in the physical dimensions; (2) Crohn''s disease patients report psychosocial dysfunction to a greater degree than ulcerative colitis patients; (3) IBD patients report greatest concerns about having surgery, degree of energy, and body image issues such as having an ostomy bag; and (4) functional status and patient concerns correlate better with other measures of health status and previous health care utilization than the physician''s rating of disease activity. We believe that questionnaires measuring health-related quality of life (HRQOL) can be used in research and patient care to extend the clinical assessment of patients with IBD. Further work is needed to determine the role of HRQOL relative to disease activity and other physician-based assessements in predicting health outcomes.