Older people living alone at home with terminal cancer

Older people living alone at home with terminal cancer
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DOI:
10.1111/ecc.12314
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发表时间:
2016-05-01
影响因子:
2.1
通讯作者:
Skett, K.
Skett, K.
中科院分区:
医学3区
文献类型:
--
作者:
Aoun, S.;Deas, K.;Skett, K.

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本研究描述了老年人应对晚期癌症和独居的生活经历,重点是他们如何面对疾病进展带来的生物生活变化的挑战。面对面的半结构化访谈进行了两个阶段的姑息治疗客户的社区为基础的服务在西澳大利亚州(2009-2011年):43个癌症患者谁独自生活的简短访谈,然后深入访谈其中8人。使用传记中断作为解释定性数据的分析框架,出现了四个主要主题:传记中断:适应变化;传记连续性:保持正常;传记重建:重新定义正常;和传记关闭:面对结束。传记中断是一个合适的分析框架,允许识别个人世界的传记中断以及个人为保持自主性和独立性而进行的重新构建,同时承认和接受他们接近死亡。了解与个人的需要,以保持自己的身份相关的因素,将使护士与这一人口量身定制的支持计划,满足个人的需求,同时保持或恢复人的自我意识。需要考虑直接解决临终痛苦和增强尊严感和人格的干预措施。
This study describes the lived experiences of older people coping with terminal cancer and living alone, focusing on how they face challenges of the biographical life changes from their disease progression. Face-to-face semi-structured interviews were conducted in two phases with palliative care clients of a community-based service in Western Australia (2009-2011): Brief interviews with 43 cancer patients who live alone and then in-depth interviews with 8 of them. Using biographical disruption as the analytical framework for interpreting the qualitative data, four main themes emerged: Biographical disruption: adjusting to change; Biographical continuity: preserving normality; Biographical reconstruction: redefining normality; and Biographical closure: facing the end. Biographical disruption was a suitable framework for analysis, permitting identification of the biographical disruptions of the individual's world and the reframing that is undertaken by the individual to maintain autonomy and independence while acknowledging and accepting their closeness to death. Understanding the factors associated with the individual's need to maintain their own identity will enable nurses working with this population to tailor support plans that meet the individuals' needs while maintaining or restoring the person's sense of self. Interventions that directly address end-of-life suffering and bolster sense of dignity and personhood need to be considered.