Warranted concerns, warranted outlooks: a focus group study of public understandings of genetic research

Warranted concerns, warranted outlooks: a focus group study of public understandings of genetic research
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DOI:
10.1016/j.socscimed.2004.05.012
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发表时间:
2005-01-01
影响因子:
5.4
通讯作者:
Condit, CA
Condit, CA
中科院分区:
医学2区
文献类型:
--
作者:
Bates, BR;Lynch, JA;Condit, CA

文献摘要

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本文讨论了美国公众如何解释他们对基因研究的担忧以及他们预见的好处。我们基于斯蒂芬·图尔明(Stephen Toulmin)的论证授权模型,制定了一个讨论公众关于基因技术主张的总体框架。在回顾了有关基因研究的民意调查结果后,我们提出了一项关于公众对遗传学理解的焦点小组研究。我们概述了该组织提供的接受基因技术某些方面和拒绝其他方面的保证或公开接受的“充分理由”。公众在讨论基因研究时提出的理由表明,公众对基因研究有着复杂而明智的理解,尽管是一种非技术性的理解。本文最后讨论了公众参与基因研究辩论的重要性,以及研究人员和政策制定者如何适应公众对遗传学的担忧。 (C) 2004 Elsevier Ltd. 保留所有权利。
This paper discusses how the American public accounts for the concerns that they have about genetic research and the benefits that they foresee. We develop a general framework for discussing public claims about genetic technology based on Stephen Toulmin's model of warrants in argumentation. After a review of the results from public opinion polls about genetic research, we present a focus group study of public understandings of genetics. We outline the warrants, or publicly accepted "good reasons", that this group offers for accepting some aspects of genetic technology and for rejecting other aspects. The warrants presented by the public in their discussion of genetic research indicate that the public has a complex, informed understanding of genetic research, albeit a non-technical one. The paper concludes with a discussion of the importance of public participation in debates over genetic research and the ways that researchers and policy makers could adapt to public concerns about genetics. (C) 2004 Elsevier Ltd. All rights reserved.