The Implementation Challenge and the Learning Health System for SCI Initiative
The Implementation Challenge and the Learning Health System for SCI Initiative
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DOI：
10.1097/phm.0000000000000672
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发表时间：
2017-02-01
影响因子：
3
通讯作者：
Bickenbach, Jerome
中科院分区：
文献类型：
--
作者：
Stucki, Gerold;Bickenbach, Jerome
本文通过将国际脊髓损伤（InSCI）社区调查研究与SCI倡议的学习健康系统（LHS-SCI）联系起来介绍这一特刊。LHS-SCI旨在应对实施方面的挑战，即根据世界卫生组织《SCI国际展望》报告中有针对性的政策建议以及世卫组织《全球残疾人行动计划》的行动呼吁，进行政策改革。本文回顾了LHS-SCI中与国际可比信息相关的组成部分，指导行动的变革理论，以及循证决策的工具。人与人的健康需求以及社会对这些需求的反应之间的相互作用为LHS-SCI倡议的组织提供了基础。此外，正如本特刊中的其他文章详细描述的那样，InSCI研究的基本原理、概念化和研究设计也受到LHS for SCI Initiative的基本原理和使命的影响。LHS-SCI及其实施挑战是InSCI研究的设计和LHS-SCI的总体使命，即通过国际循证和权利知情的研究和政策改革努力，不断改善世界各地SCI患者的生活体验。
The paper introduces the special issue by linking the International Spinal Cord Injury (InSCI) Community Survey study to the Learning Health System for SCI Initiative (LHS-SCI). The LHS-SCI was designed to respond to the implementation challenge of bringing about policy reform in light of the targeted policy recommendations of World Health Organization's International Perspectives on SCIreport as well as the call for action of WHO's Global Disability Action Plan. The paper reviews the components of LHS-SCI relevant to internationally comparable information, a theory of change to guide for action, and the tools for evidence-informed policy. The interplay between persons, their health needs, and the societal response to those needs provides the foundation for the organization of the LHS-SCI Initiative. Moreover, as the other articles in this special issue describe in detail, the rationale, conceptualization, and study design of the InSCI study are also informed by the rationale, and mission, of the LHS for SCI Initiative. The LHS-SCI, and the implementation challenge that motivates it, is responsible for the design of the InSCI study and the overall mission of LHS-SCI to continuously improve the lived experience of people living with SCI around the world through an international evidence-and rights-informed research and policy reform effort.