Access to wound dressings for patients living with epidermolysis bullosa - an Australian perspective
Access to wound dressings for patients living with epidermolysis bullosa - an Australian perspective
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DOI：
10.1111/j.1742-481x.2012.01116.x
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发表时间：
2014-10-01
影响因子：
3.1
通讯作者：
Stevens, Louise J.
中科院分区：
文献类型：
--
作者：
Stevens, Louise J.
大疱性表皮病（EB）是一种罕见的遗传性皮肤病，其特征是皮肤和粘膜脆弱和起泡。皮肤可以起泡和剪切远离最小的摩擦，创伤和日常活动。该疾病会导致多种并发症，但伤口护理是严重EB的主要挑战，而良好的伤口护理是伤口管理的重要组成部分。伤口护理的目标是选择一种产品，保护脆弱的皮肤，限制摩擦，减少疼痛，促进愈合。然而，对于EB患者来说，获得伤口敷料是一项挑战。本文讨论了EB敷料在世界上许多国家的可用性，还描述了澳大利亚的创新性国家大疱性表皮生长因子敷料计划（NEBDS），旨在通过减少与提供敷料相关的经济负担来改善EB患者的生活质量。
Epidermolysis Bullosa (EB) is a rare genetic skin disorder characterised by fragility and blistering of skin and mucous membranes. Skin can blister and shear away from minimal friction, trauma and every day activities. The disease causes a wide range of complications but wound care is the major challenge to severe EB, and good wound care is an essential part of wound management. The goal of wound care was to choose a product that protects the fragile skin, limits friction, decreases pain and promotes healing. However, access to wound dressings for those people living with EB is challenging. This article discusses the availability of EB dressings in a number of countries around the world and also describes an innovative National Epidermolysis Bullosa Dressings Scheme (NEBDS) in Australia, which aims to improve the quality of life of people with EB, by reducing the financial burden associated with the provision of dressings accordingly.