Patients' Preferences regarding Shared Decision-Making in the Treatment of Inflammatory Bowel Disease: Results from a Patient-Empowerment Study
Patients' Preferences regarding Shared Decision-Making in the Treatment of Inflammatory Bowel Disease: Results from a Patient-Empowerment Study
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DOI：
10.1159/000253862
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发表时间：
2010-01-01
期刊：
影响因子：
3.2
通讯作者：
van der Woude, C. Janneke
中科院分区：
文献类型：
--
作者：
Baars, Judith E.;Markus, Tineke;van der Woude, C. Janneke
背景：共同决策在临床实践中越来越受欢迎，尽管患者希望参与选择治疗的程度存在很大差异。由于缺乏关于慢性疾病如炎症性肠病（IBD）患者偏好的数据，我们想评估IBD患者对参与此类决策的偏好。方法：要求成年IBD患者匿名完成一项关于他们偏好的在线调查。采用非参数检验（chi(2)）来确定应答者与被调查者之间的关系。结果：1067例患者完成了问卷调查，其中克罗恩病617例，溃疡性结肠炎450例。患者平均年龄43岁（SD 13.7）；大多数是女性（66%）。总共有866名患者（81%）认为积极参与决策过程“非常重要”，另有177名患者（17%）认为“相当重要”。当被问及如何改善治疗时，537名患者（50%）希望与医生进行密切、公平的合作。这种偏好与疾病持续时间显著相关
Background: Shared decision-making is gaining favor in clinical practice, although the extent to which patients want to be involved in choosing their treatment varies substantially. Because data are lacking on the preferences of patients with chronic diseases such as inflammatory bowel disease (IBD), we wanted to assess IBD patients' preferences about being involved in such decisions. Methods: Adult IBD patients were asked to anonymously complete an online survey on their preferences. Non-parametric tests (chi(2)) were used to determine the relationship between responses and respondents. Results: The questionnaire was completed by 1,067 patients, 617 with Crohn's disease and 450 with ulcerative colitis. Patients' mean age was 43 (SD 13.7) years; the majority were female (66%). In total, 866 patients (81%) reported it as 'very important' to be actively involved in the decision-making process, and another 177 (17%) rated it as 'quite important'. When asked how their treatment could be improved, 537 patients (50%) wanted close, equitable collaboration with their physician. This preference was significantly associated with a disease duration of