Effects of Using Child Personas in the Development of a Digital Peer Support Service for Childhood Cancer Survivors.
Effects of Using Child Personas in the Development of a Digital Peer Support Service for Childhood Cancer Survivors.
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DOI：
10.2196/jmir.7175
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发表时间：
2017-05-18
影响因子：
7.4
通讯作者：
Nygren JM
中科院分区：
文献类型：
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作者：
Wärnestål P;Svedberg P;Lindberg S;Nygren JM
同伴支持服务有潜力通过应对与生存和恢复日常生活相关的身体、心理和社会挑战来支持癌症幸存者。让孩子们自己参与设计过程可以使服务适应真实的用户行为和目标。由于存在一些挑战，对以用户为中心的设计过程提出了关键要求，因此我们开发了一种基于角色的设计方法，适合儿童的特殊需求，促进健康并处理敏感的设计环境。本研究的目的是评估使用儿童角色为儿童癌症幸存者开发数字同伴支持服务的效果。用户群体的需求和行为是根据队列数据和文献、对儿童癌症幸存者（n = 15、8-12 岁）的焦点小组访谈、对医疗保健专业人员和家长的利益相关者访谈（n = 13）、用户访谈和观察来表征的。在三个探索性设计研讨会和一个儿童验证研讨会（n = 7）中，与儿童癌症幸存者（n = 5）一起解释和解释了数据。我们提出了关于如何在与儿童癌症幸存者一起开发数字同伴支持服务的背景下共同设计儿童角色的发现和见解。这项工作产生了三个主要角色，对三个用户原型的行为、态度和目标进行建模，这些原型是为在这种特定的使用环境中开发健康促进服务而量身定制的。此外，我们还报告了在设计名为“给我休息一下”的数字同行支持服务时使用这些角色的效果。通过逐步应用数据收集和分析的步骤，我们获得了真实的儿童角色，并成功用于为处于脆弱生命阶段的儿童设计和开发健康促进服务。儿童角色可以为内部和外部目的提供有效的协作和沟通帮助。
Peer support services have the potential to support children who survive cancer by handling the physical, mental, and social challenges associated with survival and return to everyday life. Involving the children themselves in the design process allows for adapting services to authentic user behaviors and goals. As there are several challenges that put critical requirements on a user-centered design process, we developed a design method based on personas adapted to the particular needs of children that promotes health and handles a sensitive design context. The purpose of this study was to evaluate the effects of using child personas in the development of a digital peer support service for childhood cancer survivors. The user group’s needs and behaviors were characterized based on cohort data and literature, focus group interviews with childhood cancer survivors (n=15, 8-12 years), stakeholder interviews with health care professionals and parents (n=13), user interviews, and observations. Data were interpreted and explained together with childhood cancer survivors (n=5) in three explorative design workshops and a validation workshop with children (n=7). We present findings and insights on how to codesign child personas in the context of developing digital peer support services with childhood cancer survivors. The work resulted in three primary personas that model the behaviors, attitudes, and goals of three user archetypes tailored for developing health-promoting services in this particular use context. Additionally, we also report on the effects of using these personas in the design of a digital peer support service called Give Me a Break. By applying our progressive steps of data collection and analysis, we arrive at authentic child-personas that were successfully used to design and develop health-promoting services for children in vulnerable life stages. The child-personas serve as effective collaboration and communication aids for both internal and external purposes.