Recruiting hispanic women for a population-based study: Validity of surname search and characteristics of nonparticipants

Recruiting hispanic women for a population-based study: Validity of surname search and characteristics of nonparticipants
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DOI:
10.1093/aje/kwm192
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发表时间:
2007-11-15
影响因子:
5
通讯作者:
Slattery, Martha L.
Slattery, Martha L.
中科院分区:
医学2区
文献类型:
--
作者:
Sweeney, Carol;Edwards, Sandra L.;Slattery, Martha L.

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对美国西班牙裔人口的健康进行研究面临着识别西班牙裔个人并获得良好研究参与的挑战。在本报告中,针对犹他州和新墨西哥州的乳腺癌病例和对照,与自我报告相比,使用姓氏搜索和癌症登记处收集的种族信息来识别西班牙裔人得到了验证。在 2000-2005 年的一项研究访谈中,对影响西班牙裔参与的因素进行了评估。通过癌症登记记录和姓氏搜索识别西班牙裔的阳性预测值对于病例为 82.3%,对于对照为 73.2%。被正确分类的西班牙裔与被错误分类的西班牙裔不同,他们的语言文化适应和教育程度较低。年龄较大与成功联系西班牙裔对照者呈正相关(p(趋势)< 0.0001),但与访谈合作呈负相关(p(趋势)< 0.0001)。美国人口普查数据描述的社区特征,包括收入、教育和城市/农村居住,并没有显着影响西班牙裔病例或对照的参与。作者得出的结论是,姓氏搜索可以有效地识别西班牙裔人,尽管使用这种方法识别的个人并不完全具有代表性。西班牙裔病例和对照的招募似乎不受与社区特征相关的选择偏差的影响。
Conducting research on the health of Hispanic populations in the United States entails challenges of identifying individuals who are Hispanic and obtaining good study participation. In this report, identification of Hispanics using a surname search and ethnicity information collected by cancer registries was validated, compared with self-report, for breast cancer cases and controls in Utah and New Mexico. Factors influencing participation by Hispanics in a study interview in 2000-2005 were evaluated. The positive predictive value of identification as Hispanic by cancer registry records and surname search was 82.3% for cases and 73.2% for controls. Hispanics who were correctly classified differed from those who were misclassified, reporting lower language acculturation and educational attainment. Older age was positively associated with success in contacting Hispanic controls (p(trend) < 0.0001) but negatively associated with cooperation with the interview (p(trend) < 0.0001). Community characteristics described by US Census data, including income, education, and urban/rural residence, did not significantly influence participation by Hispanic cases or controls. The authors conclude that a surname search efficiently identifies Hispanics, although individuals identified using this method are not completely representative. Recruitment of Hispanic cases and controls does not appear to be affected by selection bias related to community characteristics.