Identifying the factors that facilitate or hinder advance planning by persons with dementia

Identifying the factors that facilitate or hinder advance planning by persons with dementia
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DOI:
10.1097/wad.0b013e318169d669
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发表时间:
2008-07-01
影响因子:
2.1
通讯作者:
Karlawish, Jason H. T.
Karlawish, Jason H. T.
中科院分区:
医学4区
文献类型:
--
作者:
Hirschman, Karen B.;Kapo, Jennifer M.;Karlawish, Jason H. T.

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晚期痴呆症患者的成员,以确定促进或阻碍痴呆症患者提前计划的因素。所有访谈均使用定性数据分析技术进行分析。大多数 (77%) 的家庭成员表示,他们的亲属有某种形式的书面预先医疗指示,至少一半的家庭成员报告了之前与患者讨论过的医疗保健偏好 (57%)、生活状况或安置问题 (50%) 以及财务或遗产规划 (60%)。家庭成员报告了一些促进计划的主题和其他阻碍计划的主题。最常触发计划的事件是与患者的朋友或家人相关的医疗、生活状况或财务问题(57%)。计划的障碍包括被动和主动回避。最常见的被动回避形式是直到为时已晚而无法进行讨论时才意识到计划的重要性(63%)。最常见的主动回避形式是避免讨论(53%)。这些数据提出了潜在的补救策略,以解决推进规划讨论的障碍。
members of patients with advanced dementia to identify the factors that facilitate or hinder advance planning by persons with dementia. All interviews were analyzed using qualitative data analysis techniques. The majority (77%) of family members reported that their relative had some form of written advance directive, and at least half reported previous discussions about health care preferences (57%), living situation or placement issues (50%), and finances or estate planning (60%) with the patient. Family members reported some themes that prompted planning and others that were barriers to planning. Events that most often triggered planning were medical, living situation, or financial issues associated with a friend or family member of the patient (57%). Barriers to planning included both passive and active avoidance. The most common form of passive avoidance was not realizing the importance of planning until it was too late to have the discussion (63%). The most common form of active avoidance was avoiding the discussion (53%). These data suggest potentially remediable strategies to address barriers to advance planning discussions.