A randomized, controlled study of Internet peer-to-peer interactions among women newly diagnosed with breast cancer

A randomized, controlled study of Internet peer-to-peer interactions among women newly diagnosed with breast cancer
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DOI:
10.1002/pon.1586
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发表时间:
2010-04-01
期刊:
影响因子:
3.6
通讯作者:
Coyne, James C.
Coyne, James C.
中科院分区:
医学2区
文献类型:
--
作者:
Salzer, Mark S.;Palmer, Steven C.;Coyne, James C.

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目的:在乳腺癌妇女中,同伴间的互动与增强的心理社会适应有关。数以百万计的癌症妇女和其他患有各种健康状况的妇女利用互联网建立同伴关系,通常没有专业的节制。本文报道了第一次随机对照研究的结果,这些类型的基于互联网的同伴interactions.Methods的好处:这项试点研究涉及78名妇女最近被诊断为乳腺癌。参与者被随机分配到互联网同伴支持条件或基于互联网的教育控制条件。在基线、4个月和12个月时收集数据。感兴趣的主要成果是心理困扰和quality of life.Results:相反的假设,参与者在互联网上的同伴支持条件往往做得更糟,随着时间的推移,对主要成果的措施。两组在感知社会支持、自我效能或希望的次要结果上没有差异。讽刺的是,许多妇女在互联网上的同伴支持条件积极参与,并报告高水平的满意度,这表明一些自我感知的benefits.Conclusions:这些结果表明,基于互联网的点对点的互动可能不一定是普遍有益的,尽管许多参与者报告的积极经验。需要进一步的研究来了解更大样本的这种影响的程度。此外,这些结果提出了关于需要了解基于互联网的通信的相对有效性的问题,按群体结构(即,非结构化的/结构化的;未调节的/调节的)和内容的影响(即,恐惧/焦虑的表达,有见地的披露等)关于结果。版权所有(C)2009约翰威利父子有限公司
Objective: Peer-to-peer interactions are associated with enhanced psychosocial adjustment among women with breast cancer. Millions of women with cancer and others with various health conditions use the Internet to establish peer relationships, usually without professional moderation. This paper reports findings from the first randomized, controlled study of the benefits of these types of Internet-based peer interactions.Methods: This pilot study involved seventy-eight women who were recently diagnosed with breast cancer. Participants were randomly assigned to either an Internet peer support condition or Internet-based educational control condition. Data were gathered at baseline and 4- and 12-months. Primary outcomes of interest were psychological distress and quality of life.Results: Contrary to hypotheses, participants in the Internet peer support condition tended to do worse over time on primary outcome measures. There were no differences between groups on secondary outcomes of perceived social support, self-efficacy, or hope. Paradoxically, many women in the Internet peer support condition actively participated and reported high levels of satisfaction, suggesting some self-perceived benefits.Conclusions: These results suggest that Internet based peer-to-peer interactions may not necessarily be universally beneficial despite the positive experiences reported by many participants. Further research is needed to understand the magnitude of this effect with a larger sample. Moreover, these results raise questions about the need to understand the comparative effectiveness of Internet-based communications by group structure (i.e., unstructured/structured; unmoderated/moderated) and the effect of content (i.e., expression of fear/anxiety, insightful disclosures, etc.) on outcomes. Copyright (C) 2009 John Wiley & Sons, Ltd.