Comparing Parents of Children With Down Syndrome at Different Life Span Stages
Comparing Parents of Children With Down Syndrome at Different Life Span Stages
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DOI：
10.1111/jomf.12312
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发表时间：
2016-08-01
影响因子：
6
通讯作者：
Springer, Nicole P.
中科院分区：
文献类型：
--
作者：
Goff, Briana S. Nelson;Monk, J. Kale;Springer, Nicole P.
本研究探讨唐氏综合征患儿父母在不同生命阶段的经验。使用混合方法设计，目前的研究包括445名参与者，他们根据儿童的年龄分为4组：（a）5岁以下儿童的父母（幼儿），（B）5至11岁儿童的父母（c）12至18岁儿童的父母（青少年），以及（d）18岁以上儿童的父母（成年人）。父母在童年中期和青少年时期的应对策略得分高于幼儿期或以后的几年（成年儿童）。定性数据确定了4组父母报告的关键领域，包括接受诊断，积极的态度，他们孩子的发展水平，以及其他有助于他们态度和应对的内部和外部因素。
The present study explored the experiences of parents of children with Down syndrome at different phases of the life span. Using a mixed-method design, the current study included 445 participants who were divided into 4 groups based on the age of the child: (a) parents of children under 5 years of age (early childhood), (b) parents of children between 5 and 11 years of age (middle childhood), (c) parents of children between 12 and 18 years of age (adolescence), and (d) parents of children over the age of 18 (chronological adults). Parents reported higher coping strategy scores during the middle childhood and adolescent years than early childhood or later years (adult children). Qualitative data identified key areas that parents across the 4 groups reported, including acceptance of the diagnosis, having a positive attitude, their child's developmental level, and other internal and external factors that contribute to their attitudes and coping.