Dementia, Goals of Care, and Personhood: A Study of Surrogate Decision Makers’ Beliefs and Values
Dementia, Goals of Care, and Personhood: A Study of Surrogate Decision Makers’ Beliefs and Values
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痴呆症、护理目标和人格：代理决策者的信念和价值观的研究
DOI：
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发表时间：
2010
期刊：
影响因子：
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通讯作者：
S. Schultz
中科院分区：
文献类型：
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作者：
L. Kaldjian;L. Shinkunas;M. Bern;S. Schultz
晚期痴呆症患者的代理决策者在为他们所爱的人做出医疗治疗的决定方面发挥着关键作用。我们对20名代孕者进行了深入的访谈，以检验他们的关怀目标、偏好和对人格的信念。所有被调查者都认为舒适度的目标很重要，30.0%的人认为治疗身体问题很重要。相当大比例的代孕者承认与痴呆症相关的患者的推理、沟通和与他人交往的能力发生了变化。定性结果表明，关于痴呆症对人格相关因素的影响，例如尊严、他人的尊重和有价值的生活，人们有不同的看法。总而言之，我们采访的代孕者表达了对护理目标的不同偏好，以及对痴呆症对人格影响的不同评估。
Surrogate decision makers for persons with advanced dementia play a key role in making decisions about medical treatments for their loved ones. We conducted in-depth interviews of 20 surrogates to examine their goals of care preferences and beliefs about personhood. All surrogates believed the goal of comfort was important, and 30.0% believed that curing physical problems was important. Significant proportions of surrogates acknowledged dementia-related changes in patients’ ability to reason, communicate, and relate to others. Qualitative findings demonstrated diverse beliefs regarding the impact of dementia on factors related to personhood, for example, dignity, respect from others, and having a life worth living. In conclusion, the surrogates we interviewed expressed diverse preferences regarding goals of care and diverse assessments about the impact of dementia on personhood.