PARENTS RECALL ON THE DIAGNOSIS OF CANCER IN THEIR CHILD
PARENTS RECALL ON THE DIAGNOSIS OF CANCER IN THEIR CHILD
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DOI：
10.1002/pon.2960030306
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发表时间：
1994-10-01
期刊：
影响因子：
3.6
通讯作者：
MCNINCH, A
中科院分区：
文献类型：
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作者：
EISER, C;PARKYN, T;MCNINCH, A
对30名癌症患儿的母亲（n = 28）和父亲（n = 23）分别进行了访谈，询问他们对诊断前的回忆以及在诊断访谈中的经历。关于孩子们是如何被告知的，以及谁被告知的信息也被引出来了。父母报告说，从他们第一次寻求有关孩子的专业建议到确诊之间有相当大的延迟（平均17周）。父母获得诊断所需的时间越长，他们随后就越责怪全科医生（p < 0.05）。所有8岁以上的儿童通常由咨询师告知治疗情况。在诊断时，所有的家长都回忆说，他们已经了解了癌症和建议的治疗方法。很少有人回忆说，他们提供了任何有关副作用、并发症或原因的信息。讨论了何时考虑这些问题的影响。很多家长觉得即使有机会也问不出问题。数据表明，需要改善家庭、专科医院和地方服务机构之间的沟通。
Mothers (n = 28) and fathers (n = 23) of 30 children with cancer were interviewed separately about their recall of the period immediately before the diagnosis, and their experiences during the diagnostic interview. Information about how the children were told, and by whom, was also elicited. Parents reported considerable delay between the time when they first sought professional advice about their child and the diagnosis being confirmed (mean = 17 weeks). The longer it took for parents to achieve a diagnosis, the more they subsequently blamed the general practitioner (p < 0.05). All children over 8 years of age were informed about treatment, usually by the consultant. On diagnosis, all parents recalled that information was given about cancer and proposed treatment. Fewer recalled that any information was given about side-effects, complications or the cause. Implications for when these issues should be considered are discussed. Many parents felt unable to ask questions even when given the opportunity. The data point to the need to improve communications between families, specialist hospitals and local services.