Met and unmet care needs of older people with dementia living at home: Personal and informal carers' perspectives

Met and unmet care needs of older people with dementia living at home: Personal and informal carers' perspectives
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DOI:
10.1177/1471301217733233
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发表时间:
2019-08-01
影响因子:
2.4
通讯作者:
Rymaszewska, Joanna
Rymaszewska, Joanna
中科院分区:
法学3区
文献类型:
--
作者:
Mazurek, Justyna;Szczesniak, Dorota;Rymaszewska, Joanna

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在波兰,很少有关于照顾老年痴呆症患者的整体方法的报道。这项研究的目的是评估痴呆症患者在家中生活的需求。这是通过评估痴呆症患者本身及其护理人员的观点来完成的。这项研究包括47名被诊断患有轻度至中度痴呆症的人和41名非正式护理人员,他们都住在波兰的弗罗茨瓦夫,参与了MeetingDem项目。这些需求是用手杖评估的。其他使用的量表有:MMSE, GDS和QOL-AD。护理人员报告的需求,无论是满足还是未满足,都比痴呆症患者本身要多得多。据报道,痴呆症患者及其护理人员最常见的未满足需求包括日常生活活动、心理困扰和陪伴需求。根据这项研究的结果,可以提供量身定制的多学科治疗,根据他们的需求和愿望进行调整,从而创造综合和个性化的支持。
In Poland, there are few reports of the holistic approach to caring for older people with dementia. The aim of this study was to assess the needs of people with dementia living at home. This was done by evaluating the perspective of people with dementia themselves and that of their carers. The study included 47 people diagnosed with mild to moderate dementia and 41 informal carers, all living in Wroclaw in Poland, involved in the MeetingDem project. The needs were assessed using the CANE. Other scales used were: the MMSE, the GDS and the QOL-AD. The carers reported significantly more needs, both met and unmet, than the people with dementia themselves. The most frequent reported unmet needs both by the people with dementia and their carers included activities of daily living, psychological distress and the need for company. Based on this study's findings, tailored multidisciplinary treatment, adjusted to their needs and wishes, can be offered thus creating integrated and individualised support.