Quality of life of adults with acute leukaemia.

Quality of life of adults with acute leukaemia.
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急性白血病成人患者的生活质量。

DOI:
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发表时间:
1993
影响因子:
3.8
通讯作者:
A. Ek
A. Ek
中科院分区:
医学3区
文献类型:
--
作者:
C. Berterö;A. Ek

文献摘要

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急性白血病的原因尚不清楚。如果不治疗,这种疾病通常在几个月后就会致命。治疗方案是化疗,有时也包括骨髓移植,目的是治愈患者。患者不仅生活在一种威胁生命的疾病的压力下,还有治疗可能导致的所有生理并发症,治疗方案还涉及到巨大的心理影响。生活质量(QOL)的概念对每个人来说都是个别的,因为他/她对生活内容的价值的体验是个别的。这项研究的主要目的是描述生活质量对成人急性白血病意味着什么,而不是描述生活质量的程度。第二个目的是赋予生活质量的概念与护理相关的理论和实证意义。8名成年后被诊断为急性白血病的成年人接受了关于他们生活质量的采访。在所有的采访中,这个概念都被赋予了一个更好的维度:对生活的积极态度。在较高维度的下方是两个更深的维度:人际关系和自主性。在这些维度之下,被赋予了不同的品质,即。安全、支持、尊重、信息和对话。
The cause of acute leukaemia is unknown. Untreated, the disease is generally fatal after a few months. The therapeutic regimen is chemotherapy, and sometimes also bone marrow transplantation, and the aim is to cure the patient. Not only does the person live under pressure from a life-threatening disease with all the physiological complications that therapy can result in, the therapeutic regimen also involves a great psychological effect. The concept of quality of life (QOL) is individual for each person, as is his/her experience of the value of the contents of life. The principal aim of the study was to describe what QOL means to adults with acute leukaemia, not to describe the degree of QOL. The second aim was to give the concept of QOL a theoretical and empirical significance relevant to nursing care. Eight adults with diagnosed acute leukaemia detected in adulthood have been interviewed about their quality of life. The concept was given one superior dimension in all the interviews; positive attitude to life. Below the superior dimension were two further dimensions; interpersonal relationships and autonomy. Different qualities were given below these dimensions, viz. security, support, respect, information and conversation.