Race, Risk, and Recreation in Personal Genomics: The Limits of Play

Race, Risk, and Recreation in Personal Genomics: The Limits of Play
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DOI:
10.1111/maq.12059
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发表时间:
2013-12-01
影响因子:
2.2
通讯作者:
Lee, Sandra Soo-Jin
Lee, Sandra Soo-Jin
中科院分区:
法学3区
文献类型:
--
作者:
Lee, Sandra Soo-Jin

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尽管遗传学已经超越了种族,但新兴的遗传祖先产业揭示了遗传学如何提供新技术,通过这种技术,个人可以以复杂的方式与时间和空间的交叉点联系起来,概括了对种族秩序,起源和群体成员的理解。这篇文章的重点是“娱乐”的比喻断言在市场上的祖先基因测试和检查的建议,自我发现,通过恢复失去的亲人。娱乐和再创造的主题自相矛盾地暗示了自我启示的被动性和在一个不同的、更开明的未来中重新行动和重新创造自我的力量。直接面向消费者的个人基因检测公司在这一消费者游戏中扮演监护人的角色,提供量身定制的基因脚本,并强调消费者可能如何使用他们的信息。本文批判性地审视了祖先,种族和遗传变异的概念,以及它们对公众理解种族和遗传学之间关系的影响。
Despite the mantra that genetics has moved beyond race, the burgeoning industry of genetic ancestry reveals how genetics has offered new technology through which individuals can link to intersections in time and space in complex ways that recapitulate understandings of racial order, origins, and group membership. This article focuses on the trope of "recreation" asserted in the marketing of ancestry genetic tests and examines the suggestion of self-discovery through the recovery of lost kin. Themes of recreation and re-creation paradoxically suggest both passivity of self-revelation and the power to re-act and re-create one's self in light of a different, more enlightened future. Direct-to-consumer personal genetics testing companies play guardian to this consumer play, providing tailored genetic scripts and highlighting how consumers might use their information. This article critically examines the play with concepts of ancestry, ethnicity, and genetic variation and their implications for public understanding of the relationship between race and genetics.