Association between Oral Health-Related Quality of Life in People with Rare Diseases and Their Satisfaction with Dental Care in the Health System of the Federal Republic of Germany
Association between Oral Health-Related Quality of Life in People with Rare Diseases and Their Satisfaction with Dental Care in the Health System of the Federal Republic of Germany
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DOI：
10.3390/ijerph15081732
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发表时间：
2018-08-01
影响因子：
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通讯作者：
Jung, Susanne
中科院分区：
文献类型：
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作者：
Hanisch, Marcel;Wiemann, Sabrina;Jung, Susanne
背景资料：本研究的目的是从受罕见疾病影响的人的角度检查德国目前的牙科保健状况，特别是关于他们对德国牙科保健系统的满意度，从而评估他们的观点和他们的口腔健康相关生活质量（OHRQoL）之间的关系。研究方法：向罕见疾病自助组织ACHSE e. V.的成员协会发送了一份关于他们在牙科援助和医疗保健系统（如OHIP-14）方面的经验的问卷。通过非参数Tau de Kendall检验（p < 0.05）对OHIP-14值与患者观点之间的相关性进行统计分析。结果如下：OHIP评分与患者对牙科辅助和医疗保健系统的看法之间存在统计学显著相关性（p < 0.05）。对于那些对卫生保健系统的支持感到满意的受访者，确定的平均OHIP得分为8.54 +/- 10.45分（范围：0-48）。感觉没有得到医疗保健系统充分支持的组的平均OHIP得分为16.07 +/- 13.43分（范围：0-56）。讨论内容：大多数患有罕见病的受访者对德国的医疗保健系统及其在牙科保健方面的支持感到不满。
Background: The aim of this study was to examine the current dental care situation in Germany from the perspective of those affected by a rare disease, especially concerning their satisfaction with the German dental health care system, and thus assess the relationship between their perspective and their oral health-related quality of life (OHRQoL). Methods: A questionnaire regarding their experiences with the dental assistance and the health care system, such as the OHIP-14, was sent to the member associations of the organization of self-help groups for rare diseases ACHSE e.V. The correlation between OHIP-14 values and patient's perspective was statistically analyzed by the non-parametric Tau de Kendall test (p < 0.05). Results: There was a statistically significant correlation between the OHIP score and the patient's perspective regarding dental assistance and health care system (p < 0.05). For those surveyed who were satisfied with the support of the health care system, an average OHIP score of 8.54 +/- 10.45 points (range: 0-48) was determined. The group that did not feel sufficiently supported by the health care system had an average OHIP score of 16.07 +/- 13.43 points (range: 0-56). Discussion: The majority of respondents with rare diseases are dissatisfied with the German health care system and its support with regard to dental care.