The current fertility preservation consultation model: are we adequately informing cancer patients of their options?
The current fertility preservation consultation model: are we adequately informing cancer patients of their options?
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DOI：
10.1093/humrep/des188
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发表时间：
2012-08-01
影响因子：
6.1
通讯作者：
Mersereau, Jennifer E.
中科院分区：
文献类型：
--
作者：
Balthazar, Ursula;Deal, Allison M.;Mersereau, Jennifer E.
关于癌症患者在生育保留（FP）咨询（FPC）后保留的信息量的信息非常有限。我们的目标是评估患者对FPC的认识，并研究增加知识的预测因素。我们在学术IVF中心进行了一项多中心、横断面、基于网络的调查，包括2009年4月至2010年12月期间接受全面FPC的1843岁女性。主要的结果测量是一个知识得分，旨在评估FP选项的理解。进行分析以评估哪些患者变量与较高的知识得分相关。开发了一个13个项目的计划生育知识工具（KuderRichardson 20 0.64），在90名合格的受试者中，66人成功联系，52人完成调查（应答率79）。参与者的中位年龄为30.7岁（四分位距（IQR）24.936.9），大多数是白人、大学毕业生、未生育且处于忠诚的关系中。FPC后知识评分中位数为6（IQR：59）。较高的知识得分与大学教育，较高的收入，乳腺癌的初步诊断，首次FPC后与FP专家的额外联系以及使用特定参考网站（如）相关。产次、婚姻状况和完成计划生育治疗与知识得分无关。全面计划生育后的计划生育知识仍然有限。可能需要对当前单次访视FPC进行修改，例如标准随访访视或其他教育工具，以提高患者对复杂FP治疗方案的理解。需要进一步的研究来验证更广泛的接受FPC的癌症患者人群的知识规模。
There is very limited information about the amount of information that cancer patients retain after a fertility preservation (FP) consultation (FPC). Our objective was to assess patients' knowledge following FPC and to examine predictors of increased knowledge.We conducted a multi-center, cross-sectional, web-based survey at academic IVF centers, including women aged 1843 years seen for comprehensive FPC between April 2009 and December 2010. The primary outcome measure was a knowledge score designed to assess comprehension of FP options. Analysis was performed to assess which patient variables were associated with higher knowledge scores. A 13-item knowledge tool about FP was developed (KuderRichardson 20 0.64).Among 90 eligible subjects, 66 were successfully contacted and 52 completed the survey (79 response rate). Participants median age was 30.7 (interquartile range (IQR) 24.936.9) years and most were Caucasian, college graduates, nulliparous and in a committed relationship. The median knowledge post-FPC score was 6 (IQR: 59). Higher knowledge scores were associated with a college education, higher income, a primary diagnosis of breast cancer, additional contact with the FP specialist following the initial FPC and use of specific reference websites such as . Parity, marital status and completion of FP treatment were not associated with knowledge scores.FP knowledge following comprehensive FPC remains limited. Modifications to the current single visit FPC, such as a standard follow-up visit or additional educational tools, may be needed to improve patient comprehension of complex FP treatment options. Further research is needed to validate the knowledge scale in broader populations of cancer patients receiving FPC.