The psychological burden of peanut allergy as perceived by adults with peanut allergy and the parents of peanut-allergic children
The psychological burden of peanut allergy as perceived by adults with peanut allergy and the parents of peanut-allergic children
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DOI：
10.1046/j.1365-2222.2000.00889.x
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发表时间：
2000-08-01
影响因子：
6.1
通讯作者：
Clarke, A
中科院分区：
文献类型：
--
作者：
Primeau, MN;Kagan, R;Clarke, A
背景花生过敏症患者的生活质量和家庭关系受到一定的影响，这迫使他们及其家人对饮食保持高度警惕，并在他们的一生中不断经历不确定性。目的比较花生过敏儿童和成人与风湿性疾病儿童和成人的生活质量和家庭关系。方法对确诊为花生过敏或风湿性疾病的患者进行为期一年的随访，并对他们的生活质量和家庭关系进行评估。结果花生过敏儿童和成人的生活质量和家庭关系与风湿性疾病儿童和成人的生活质量和家庭关系进行比较。（对于18岁以下的儿童，通过代理）关于其状况对其生活质量和家庭关系的影响的自我报告问卷。一个垂直的视觉模拟量表和家庭问卷（IFQ）的影响作为outcome measurements.Results 153花生过敏的儿童进行了比较，69名儿童与风湿性疾病，而37花生过敏的成年人进行了比较，42名成年人与风湿性疾病。与患有风湿性疾病的儿童的父母相比，花生过敏儿童的父母报告说，他们的孩子在日常活动中受到的干扰明显更多。此外，花生过敏儿童的父母在IFQ的家庭-社会维度上报告了更多的损害。相反，成年人与慢性风湿性疾病的报道，更多的破坏在他们的家庭关系比花生过敏adult.Conclusion花生过敏儿童的父母的日常活动和家庭关系的相当大的破坏，准确的诊断花生过敏是必不可少的。我们的工作应该使处理确诊花生过敏儿童的卫生保健专业人员更加意识到这些家庭可能需要的支持。此外，我们希望激励食品行业提供更多的“无花生”产品，以减少这些患者的饮食限制，同时尽量减少意外摄入的可能性。
Background Peanut-allergic patients are affected by a condition which forces them and their families to exercise extreme dietary vigilance and experience constant uncertainty throughout their lives.Objective To compare the quality of life and family relations of children and adults with a peanut allergy to that of children and adults with a rheumatological disease.Methods Patients with a confirmed diagnosis of peanut allergy or a rheumatological disease completed (for children less than 18 years, by proxy) self-report questionnaires regarding the impact of their condition on their quality of life and family relations. A vertical visual analogue scale and the Impact on Family Questionnaire (IFQ) served as outcome measures.Results One hundred and fifty-three peanut-allergic children were compared with 69 children with a rheumatological disease while 37 peanut-allergic adults were compared with 42 adults with a rheumatological disease. The parents of peanut-allergic children, compared to the parents of children with a rheumatological disease, reported that their children had significantly more disruption in their daily activities. Furthermore, the parents of peanut-allergic children reported more impairment in the familial-social dimension of the IFQ. Conversely, adults with a chronic rheumatological disease reported more disruption in their family relations than peanut-allergic adults.Conclusion Given the considerable disruption in daily activities and family relations reported by the parents of peanut-allergic children, accurate diagnosis of peanut allergy is essential. Our work should make health care professionals dealing with children with confirmed peanut allergy more aware of the support that these families may require. Furthermore, we hope to motivate food industries to offer more 'peanut free' products to decrease the dietary restrictions of these patients while minimizing their potential for accidental ingestion.