Family management of childhood chronic conditions: Does it make a difference if the child has an intellectual disability?
Family management of childhood chronic conditions: Does it make a difference if the child has an intellectual disability?
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儿童慢性病的家庭管理：如果孩子患有智力障碍，会有什么影响吗？
DOI：
10.1002/ajmg.a.38508
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发表时间：
2018
期刊：
影响因子：
--
通讯作者：
Knafl,KathleenA
中科院分区：
文献类型：
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作者：
VanRiper,Marcia;Knafl,GeorgeJ;Roscigno,Cecelia;Knafl,KathleenA
这项分析的目的是评估家庭管理措施(FAMM)在有智力残疾儿童与慢性病儿童的家庭中的适用性。根据571名患有慢性身体疾病的儿童的父母和539名唐氏综合症儿童的父母的数据，我们在六个FAMM量表上对这两组儿童进行了比较。在考虑了种族、民族、家庭收入和儿童年龄的协变量影响后，我们发现在六个FAMM量表中有四个存在显著差异，唐氏综合症儿童的父母在条件管理努力和条件影响看法量表上的积极程度显著高于患有慢性身体疾病的儿童的父母，而在儿童日常生活和条件管理能力量表上的积极程度显著低于患有慢性身体疾病的儿童的父母。家庭生活困难量表和亲子关系量表在两组间差异无统计学意义。这一分析为FAMM在研究有唐氏综合症儿童的家庭中的适用性及其在确定群体之间家庭管理的共同和独特挑战方面的效用提供了证据。
The purpose of this analysis was to assess the applicability of the Family Management Measure (FaMM) to families in which there was a child with an intellectual disability versus a chronic condition. Drawing on data from 571 parents of children with a chronic physical condition and 539 parents of children with Down syndrome, we compared the two groups across the six FaMM scales. After accounting for the covariate effects of race, ethnicity, family income, and child age, we found significant differences in four of the six FaMM scales, with parents of children with Down syndrome reporting a significantly more positive view on the Condition Management Effort and View of Condition Impact scales and a significantly less positive view on the Child's Daily Life and Condition Management Ability scales than parents of children with a chronic physical condition. There were no significant differences between groups on the Family Life Difficulty and the Parental Mutuality scales. The analysis provided evidence of the applicability of the FaMM for studying families in which there is a child with Down syndrome and its utility in identifying the common and unique challenges of family management between the groups.