Pain medication management processes used by oncology outpatients and family caregivers part II: home and lifestyle contexts.
Pain medication management processes used by oncology outpatients and family caregivers part II: home and lifestyle contexts.
复制标题
肿瘤科门诊患者和家庭护理人员使用的止痛药物管理流程第二部分:家庭和生活方式环境。
DOI:
10.1016/j.jpainsymman.2013.12.247
复制
发表时间:
2014
影响因子:
4.7
通讯作者:
Miaskowski,Christine
中科院分区:
文献类型:
--
作者:
Schumacher,KarenL;PlanoClark,VickiL;West,ClaudiaM;Dodd,MarylinJ;Rabow,MichaelW;Miaskowski,Christine
ContextDespite the increasing complexity of medication regimens for persistent cancer pain, little is known about how oncology outpatients and their family caregivers manage pain medications at home.ObjectivesTo describe the day-to-day management of pain medications from the perspectives of oncology outpatients and their family caregivers who participated in a randomized clinical trial of a psychoeducational intervention called the Pro-Self©Plus Pain Control Program. In this article, we focus on pain medication management in the context of highly individualized home environments and lifestyles.MethodsThis qualitative study was conducted as part of a randomized clinical trial, in which an embedded mixed methods research design was used. Audio-recorded dialogue among patients, family caregivers, and intervention nurses was analyzed using qualitative research methods.ResultsHome and lifestyle contexts for managing pain medications included highly individualized home environments, work and recreational activities, personal routines, and family characteristics. Pain medication management processes particularly relevant in these contexts included understanding, organizing, storing, scheduling, remembering, and taking the medications. With the exception of their interactions with the intervention nurses, most study participants had little involvement with clinicians as they worked through these processes.ConclusionPain medication management is an ongoing multidimensional process, each step of which has to be mastered by patients and their family caregivers when cancer treatment and supportive care are provided on an outpatient basis. Realistic patient- and family-centered skill-building interventions are needed to achieve effective and safe pain medication management in the contexts of individual home environments and lifestyles.