Critical Issues in Transition and Survivorship for Adolescents and Young Adults With Cancers
Critical Issues in Transition and Survivorship for Adolescents and Young Adults With Cancers
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DOI：
10.1002/cncr.26042
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发表时间：
2011-05-15
期刊：
影响因子：
6.2
通讯作者：
Hudson, Melissa M.
中科院分区：
文献类型：
--
作者：
Nathan, Paul C.;Hayes-Lattin, Brandon;Hudson, Melissa M.
大多数被诊断患有癌症的儿童、青少年和年轻人将成为长期幸存者，他们的生命还有很多年的潜力。他们从健康到诊断和治疗再到生存的旅程涉及多重转变。在此过程中应提供的过渡服务包括健康相关教育、健康监测和筛查、癌症相关并发症的管理以及与其发展需求相关的心理社会支持。幸存者需要终身护理，不仅关注癌症治疗带来的医疗风险，还关注幸存癌症的社会心理、教育和职业影响。由于许多社区卫生保健提供者缺乏对与儿童或青少年/青年癌症相关的健康风险的熟悉，幸存者必须拥有足够的健康知识来倡导基于风险的癌症相关随访；在癌症治疗结束时提供治疗总结和护理计划是促进这一过程的重要工具。幸存者可获得的资源因地理位置、医疗保健系统和幸存者特征而异。在儿科癌症中心之外接受护理的青少年和年轻人的获取机会尤其有限。癌症中心资源的限制（以及幸存者的偏好）强烈表明，幸存者社区的癌症中心和初级保健提供者需要共享幸存者的长期护理。癌症 2011；117（10 增刊）：2335-41。 (C) 2011 年美国癌症协会。
The majority of children, adolescents, and young adults diagnosed with cancer will become long-term survivors with many potential years of life ahead of them. Their journey from health through diagnosis and treatment to survivorship involves multiple transitions. Transitional services that should be available throughout this journey include health-related education, health surveillance and screening, management of cancer-related complications, and psychosocial support relevant to their developmental needs. Survivors require lifelong care that focuses not only on the medical risks arising from their cancer therapy, but also the psychosocial, educational, and vocational implications of surviving cancer. Because many community health care providers lack familiarity with the health risks associated with childhood or adolescent/young adult cancer, survivors must have sufficient health knowledge to advocate for risk-based cancer-related follow-up; the provision of a treatment summary and care plan at the conclusion of their cancer therapy is an important tool for facilitating this process. The availability of resources for survivors varies by geography, health care system, and survivor characteristics. Adolescents and young adults who receive their care outside of a pediatric cancer center have particularly limited access. The limitations in cancer center resources (along with survivor preference) strongly suggest that the long-term care of survivors will need to be shared between the cancer centers and primary care providers in survivors' communities. Cancer 2011;117(10 suppl):2335-41. (C) 2011 American Cancer Society.