Public Concern About Monitoring Twitter Users and Their Conversations to Recruit for Clinical Trials: Survey Study
Public Concern About Monitoring Twitter Users and Their Conversations to Recruit for Clinical Trials: Survey Study
复制标题
DOI：
10.2196/15455
复制
发表时间：
2019-10-30
影响因子：
7.4
通讯作者：
Zimmer, Michael
中科院分区：
文献类型：
--
作者：
Reuter, Katja;Zhu, Yifan;Zimmer, Michael
背景：Twitter 等社交网络为临床研究界提供了一个新的机会，可以根据用户活动数据吸引潜在的研究参与者。然而，公共社交媒体数据的可用性带来了新的伦理挑战，即尊重用户隐私以及监控社交媒体用于临床试验招募的适当性。研究人员表示需要将用户的观点纳入道德规范和法规的制定中。目的：本研究调查了 Twitter 用户和非用户对于使用 Twitter 监控社交媒体用户及其对话以招募潜在临床试验参与者的态度和关注程度。方法：我们使用两种在线方法来招募研究参与者：公开调查 (1) 于 2017 年 5 月 23 日至 6 月 8 日在 Twitter 上发布广告，(2) 部署在众包数据 TurkPrime 上收购平台，2017 年 5 月 23 日至 6 月 8 日期间。符合资格的参与者是居住在美国的年满 18 岁或以上的成年人。研究中包括了拥有和没有 Twitter 账户的人。 结果：尽管 Twitter（94/603，15.6%）和 TurkPrime（509/603，84.4%）上的近一半受访者表示同意社交媒体监控构成了一种侵犯其隐私的窃听形式，但超过三分之一的人不同意，近五分之一的人没有意见。卡方检验显示受访者的总体隐私担忧与他们对互联网研究的平均担忧之间存在正相关关系 (P
Background: Social networks such as Twitter offer the clinical research community a novel opportunity for engaging potential study participants based on user activity data. However, the availability of public social media data has led to new ethical challenges about respecting user privacy and the appropriateness of monitoring social media for clinical trial recruitment. Researchers have voiced the need for involving users' perspectives in the development of ethical norms and regulations.Objective: This study examined the attitudes and level of concern among Twitter users and nonusers about using Twitter for monitoring social media users and their conversations to recruit potential clinical trial participants.Methods: We used two online methods for recruiting study participants: the open survey was (1) advertised on Twitter between May 23 and June 8, 2017, and (2) deployed on TurkPrime, a crowdsourcing data acquisition platform, between May 23 and June 8, 2017. Eligible participants were adults, 18 years of age or older, who lived in the United States. People with and without Twitter accounts were included in the study.Results: While nearly half the respondents-on Twitter (94/603, 15.6%) and on TurkPrime (509/603, 84.4%)-indicated agreement that social media monitoring constitutes a form of eavesdropping that invades their privacy, over one-third disagreed and nearly 1 in 5 had no opinion. A chi-square test revealed a positive relationship between respondents' general privacy concern and their average concern about Internet research (P