Lessons from HeLa Cells: The Ethics and Policy of Biospecimens.
Lessons from HeLa Cells: The Ethics and Policy of Biospecimens.
复制标题
DOI：
10.1146/annurev-genom-083115-022536
复制
发表时间：
2016-08-31
影响因子：
8.7
通讯作者：
Beskow LM
中科院分区：
文献类型：
--
作者：
Beskow LM
Human biospecimens have played a crucial role in scientific and medical advances. Although the ethical and policy issues associated with biospecimen research have long been the subject of scholarly debate, the story of attention of a much broader audience. The story has been a catalyst for policy change, including major regulatory changes proposed in the United States surrounding informed consent. These proposals are premised in part on public opinion data, necessitating a closer look at what such data tell us. The development of biospecimen policy should be informed by many considerations—one of which is public input, robustly gathered, on acceptable approaches that optimize shared interests, including access for all to the benefits of research. There is a need for consent approaches that are guided by realistic aspirations and a balanced view of autonomy within an expanded ethical framework.
登录
查看更多内容
影响因子：
3.8
作者：
Beskow, Laura M.;Dean, Elizabeth
通讯作者：
Dean, Elizabeth
DOI：
10.1038/gim.2011.62
发表时间：
2012-04
期刊：
Genetics in medicine : official journal of the American College of Medical Genetics
影响因子：
--
作者：
通讯作者：
--
影响因子：
8.8
作者：
Beskow, Laura M.;Friedman, Joelle Y.;Weinfurt, Kevin P.
通讯作者：
Weinfurt, Kevin P.
影响因子：
2.7
作者：
Bergenmar, Mia;Johansson, Hemming;Wilking, Nils
通讯作者：
Wilking, Nils
影响因子：
8.8
作者：
Beskow, Laura M.;Dombeck, Carrie B.;Weinfurt, Kevin P.
通讯作者：
Weinfurt, Kevin P.