Long-term outcome of children with autism who received different forms of early intervention during their preschool years: a pilot study of 15 young adults.
Long-term outcome of children with autism who received different forms of early intervention during their preschool years: a pilot study of 15 young adults.
复制标题
DOI：
10.21307/sjcapp-2018-006
复制
发表时间：
2018
影响因子：
1.9
通讯作者：
Sigurdsson JF
中科院分区：
文献类型：
--
作者：
Jónsdóttir SL;Brynjarsdóttir B;Saemundsen E;Sigurdsson JF
关于早期干预的研究报告说，许多自闭症儿童取得了重大进展。关于这些儿童成年后如何生活的知识是有限的。研究自闭症儿童接受不同形式早期干预后的远期疗效。参与者是15名在学龄前被诊断患有ICD-10儿童自闭症的年轻人。5人接受了基于UCLA早期强化行为干预模型的干预，10人接受了折衷治疗。参与者从他们的第一次自闭症诊断在学龄前（时间1）到6岁（时间2）。参与者现在20多岁（时间3），在这个时间点，从父母那里收集了有关自闭症症状、共病、生活质量、功能、参与、适应行为和总体结果的信息。六名参与者回答了关于生活质量、功能和参与的问卷。两组在时间1的所有测量值均相当。第二次重新评估显示，早期强化行为干预组的智商有了显著提高，自闭症症状也显著减少，而折衷治疗组没有发现这种变化。在第3次，大多数参与者有相当大的自闭症症状。他们中大约有一半人接受了合并症的诊断。他们的生活质量和适应行为不如普通人群，但只有三分之一的人总体结果“差”。然而，在时间3，几乎没有发现组之间的任何差异。为了保持在学龄前取得的成果，可能需要将适当的干预和服务延伸到成年期。这些服务应考虑到个人及其家人所表达的感知需要。
Studies on early intervention have reported significant gains for many children with autism. Knowledge on how these children fare in adulthood is limited. To examine long-term outcome of children with autism who received different forms of early intervention. Participants were 15 young people who had all been diagnosed with ICD-10 childhood autism during the preschool years. Five received intervention based on the UCLA model for early intensive behavioral intervention, and 10 received eclectic treatment. Participants were followed from their first autism diagnosis during the preschool years (time 1) to the age of six years (time 2). The participants are now in their twenties (time 3), and at this point in time, information on autism symptoms, co-occurring disorders, quality of life, functioning, participation, adaptive behavior, and overall outcome was gathered from parents. Six of the participants answered questionnaires on quality of life, functioning, and participation. The groups were comparable on all measures at time 1. Reassessment at time 2 showed that the early intensive behavioral intervention group had made significant gains in IQ, and that autism symptoms had decreased significantly, whereas such changes were not found for the eclectic treatment group. At time 3, most participants had considerable autism symptoms. Approximately half of them had received diagnosis of a co-occurring condition. Their quality of life and adaptive behavior was less favorable than that of the general population, but only a third had “poor” overall outcome. However, at time 3, hardly any differences were found between the groups. To maintain gains made during the preschool years, appropriate intervention and services may need to be extended into adulthood. These services should take into account the perceived needs of the individual, as expressed by himself/herself and his/her family.