Using Photovoice as a participatory method to identify and strategize community participation with people with intellectual and developmental disabilities
Using Photovoice as a participatory method to identify and strategize community participation with people with intellectual and developmental disabilities
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DOI：
10.1080/11038128.2018.1502350
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发表时间：
2018-01-01
影响因子：
1.9
通讯作者：
Hammel, Joy
中科院分区：
文献类型：
--
作者：
Heffron, Jenna L.;Spassiani, Natasha A.;Hammel, Joy
背景资料：智力和发育障碍（I/DD）的成年人在社区参与方面遇到障碍，但他们对环境障碍的内部体验和对参与的支持在文献中基本上是缺失的。目的/目标：本研究的目的是评估Photovoice作为一种参与性研究方法，研究环境障碍和社区参与的支持，并制定战略，支持患有I/DD的人的自决和社区参与。本研究采用参与式行动研究（PAR）参与者在参与环境的访谈和审计期间使用Photovoice来确定高兴趣参与活动和文件支持的方法，这些环境中的障碍。数据分析采用了一种迭代的参与式方法，研究人员和参与者合作选择，情境化和编纂数据。主题分析涉及归纳和现实主义的approaches.Results/Findings：参与者包括146社区居住的成年人与I/DD从三个美国城市网站。我们提出了一个概念模型的九个主题在微系统，中观系统，外系统，宏观系统，和时间系统environmentallevel.Conclusions：使用Photovoice作为一种参与式的方法，以战略社区参与可以帮助地面系统改变努力的声音的人与I/DD。意义：通过将I/DD患者纳入与他们有关的对话中，研究人员和从业人员可以以他们认为有意义的方式支持这一人群。
Background: Adults with intellectual and developmental disabilities (I/DD) experience barriers to community participation, yet their insider experiences of environmental barriers and supports to participation are largely absent from the literature.Aim/Objective: The aims of this research were to evaluate Photovoice as a participatory research method, examine environmental barriers and supports to community participation, and develop strategies to support self-determination and community participation for and with people with I/DD.Material and method: This study utilized a participatory action research (PAR) approach in which participants used Photovoice during interviews and audits of participation environments to identify high interest participation activities and document supports and barriers in these environments. Data analysis utilized an iterative, participatory approach in which researchers and participants teamed up to select, contextualize, and codify the data. Thematic analyses involved both inductive and realist approaches.Results/Findings: Participants included 146 community-dwelling adults with I/DD from three U.S. urban sites. We present a conceptual model of nine themes at microsystem, mesosystem, exosystem, macrosystem, and chronosystem environmental levels.Conclusions: Using Photovoice as a participatory method to strategize community participation can help ground systems change efforts in the voices of people with I/DD.Significance: By including people with I/DD in conversations that concern them, researchers and practitioners can support this population in ways that they find meaningful.