The Encounter Between Informal and Professional Care at the End of Life
The Encounter Between Informal and Professional Care at the End of Life
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DOI：
10.1177/1049732308329309
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发表时间：
2009-02-01
影响因子：
3.2
通讯作者：
Ternestedt, Britt-Marie
中科院分区：
文献类型：
--
作者：
James, Inger;Andershed, Birgitta;Ternestedt, Britt-Marie
本研究的目的是获得和描述深入的知识，家庭照顾者的遭遇，在医院，非正式和专业护理之间的生命结束。我们选择了一种解释学方法，在他们所爱的人去世后6到8个月，对27名家庭照顾者进行了采访。在这次会面中，家庭照顾者对他们所爱的人的状况和情况做出了自己的评估。专业人员的态度既可能促进也可能阻碍这两种形式的护理之间的互动。家属照料者的照料行为表现为：争取治疗、被遗弃、成为伴侣、远离疾病、徘徊在亲人身边、等待死亡、成为专家和保护者。对调查结果的主要解释是，家庭照顾者拥有实用知识，知道什么样的照顾对他们所爱的人来说是最好的，或者伤害最小的。这可以与亚里士多德所谓的实践智慧联系起来。
The purpose of this study was to obtain and describe in-depth knowledge about family carers' experiences of the encounter, in a hospital, between informal and professional care at the end of life. A hermeneutic approach was chosen, and we conducted interviews with 27 family carers 6 to 8 months after their loved one's death. In the encounter, the family carers made their own assessment of their loved one's condition and situation. The professionals' attitudes could both promote and impede the interaction between the two forms of care. Family carers' care actions were characterized by struggling to get treatment, being left behind, being partners, keeping the illness at a distance, hovering beside their loved one, waiting for death, and being experts and protectors. The main interpretation of the findings is that family carers possess practical knowledge about what care is the best, or least harmful, for their loved one. This can be linked to what Aristotle called phronesis.