Women's experience of endometriosis
Women's experience of endometriosis
复制标题
DOI：
10.1111/j.1365-2648.2004.03055.x
复制
发表时间：
2004-06-01
影响因子：
3.8
通讯作者：
Denny, E
中科院分区：
文献类型：
--
作者：
Denny, E
背景子宫内膜异位症是一种慢性疾病，影响5%至15%的育龄妇女。尽管存在严重的疼痛，但诊断可能会延迟多年，妇女往往发现卫生专业人员没有认真对待她们的经历。子宫内膜异位症是如何影响他们的生活的研究很少。本文的目的是报告一项研究，探讨妇女的生活经验与糖尿病。采用定性方法，要求妇女从第一次经历子宫内膜异位症相关症状开始讲述她们的故事。在访谈中，子宫内膜异位症妇女确定了随访的关键领域。进行了15次半重点访谈，并利用所确定的关键领域和从访谈记录初步分析中得出的主题进行了专题和内容分析。从这两个过程的最后一个主题的延迟诊断，疼痛，性交困难，治疗，工作和社会关系，工作场所，和未来出现。尽管存在严重的疼痛，通常被描述为“强烈”或“疼痛”，但女性在接受子宫内膜异位症诊断时会出现延迟，并且她们的症状经常被淡化或正常化。这一点，以及有限的治疗效果，影响了与合作伙伴和家庭，工作和性关系的关系，虽然在每个领域的个人经验是不同的。子宫内膜异位症的经验渗透到妇女生活的各个方面。许多治疗的副作用加剧了这种经历。患有这种疾病的妇女需要认真对待，而不是将他们的疼痛轻视或正常化。护士通常能够很好地协助病人接受敏感和适当的护理。
Background. Endometriosis is a chronic disease affecting between 5% and 15% of women of reproductive age. Diagnosis can be delayed for many years, despite the existence of severe pain, and women often find that their experiences are not taken seriously by health professionals. Little research has been conducted into how endometriosis affects their lives.Aim. The aim of this paper is to report a study exploring women's experience of living with endometriosis.Method. A qualitative approach was used, in which women were asked to relate their stories starting from the first experience of symptoms that they associated with endometriosis. Key areas to be followed-up during interviews were identified by women with endometriosis who were not participants. Fifteen semi-focused interviews were conducted, and thematic and content analysis were carried out using the identified key areas, and themes elicited from initial analysis of the interview transcripts. From these two processes the final themes of delay in diagnosis, pain, dyspareunia, treatment, work and social relationships, the workplace, and the future emerged.Findings. Despite the existence of severe pain, often described as 'intense' or 'overwhelming', women experienced delay in receiving a diagnosis of endometriosis, and their symptoms were frequently trivialized or normalized. This, and the limited effectiveness of treatments, affected relationships with partners and family, work, and sexual relations, although individual experiences in each area were diverse.Conclusion. The experience of endometriosis pervades all aspects of a woman's life. This experience is compounded by the side effects of many treatments. Women with this disease need to be taken seriously, and not have their pain trivialized or normalized. Nurses are often well-placed to assist patients in receiving sensitive and appropriate care.