The experiences of transgender and non-binary children and young people and their parents in healthcare settings in England, UK: Interviews with members of a family support group
The experiences of transgender and non-binary children and young people and their parents in healthcare settings in England, UK: Interviews with members of a family support group
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DOI：
10.1080/15532739.2019.1693472
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发表时间：
2019-11-22
影响因子：
4.6
通讯作者：
Carlile, Anna
中科院分区：
文献类型：
--
作者：
Carlile, Anna
背景资料：在英国英格兰，跨性别和非二元儿童和年轻人及其父母在一系列医疗保健环境中的服务很差。虽然英国的平等立法和关于变性人医疗保健途径的国际指导保护这一群体免受歧视，并规定采取积极的做法，但英格兰的服务没有跟上步伐。目标：本研究旨在借鉴英国跨性别和非二元儿童，青少年及其父母在支持小组的经验，以调查他们的医疗保健提供的经验，并提出一些改进的想法。方法：数据收集与参与家庭支持小组，提供家长咨询服务，为儿童和家长的社会团体，并为学校和其他组织的培训。来自家庭支助小组27个家庭的65名家长和儿童参加了参与式讲习班，向他们介绍了“健康”、“家庭”、“朋友”和“教育”等一系列情况。“他们的参与涉及被要求定义自己的采访问题，并通过相互采访收集数据。他们的访谈记录构成了原始数据。数据由作者进行归纳编码，第二阶段是回答者检查。结果：结果构成了一小部分人的观点，因此不能一概而论。然而，它们确实说明了可能出现的一些问题。参与者的经历引出了五个关键主题：专业人员认为缺乏临床和治疗知识;过多的等候名单造成的精神困扰;专业人员的陈规定型的性别假设;医疗机构内的直接歧视;缺乏对父母和孩子声音的关注，特别是在学校的经验和患者被诊断为自闭症方面。
Background: Transgender and non-binary children and young people and their parents in England, UK are poorly served across a range of healthcare settings. Whilst UK equalities legislation and international guidance on transgender healthcare pathways protects this group from discrimination and mandates an affirmative approach, services in England are not keeping pace. Aims: This study aims to draw on the experiences of transgender and non-binary children, young people and their parents in a support group in England in order to investigate their experiences of healthcare provision, and to develop some ideas for improvement. Method: Data was collected with participants in a family support group which offers a parent helpline service, social groups for children and parents, and training for schools and other organizations. 65 parents and children from 27 families from the family support group attended participatory workshops where they were given a range of briefs: "health," "family," "friends," and "education." Their participation involved being asked to define their own interview questions and collect data by interviewing each other. Their interview notes constituted the raw data. Data was coded inductively by the author with respondent checking as a second stage. Results: Results constitute the views of a small group of people, so cannot be generalized. However, they do illustrate some of the issues which may arise. Participants' experiences elicited five key themes: professionals' perceived lack of clinical and therapeutic knowledge; mental distress caused by excessive waiting lists; professionals' stereotyped gender assumptions; direct discrimination within healthcare settings; and a lack of attention to parent and child voice, especially in terms of school-based experiences and where a patient had a diagnosis of autism.