Providing Palliative Care in a Swedish Support Home for People Who Are Homeless
Providing Palliative Care in a Swedish Support Home for People Who Are Homeless
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DOI：
10.1177/1049732315588500
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发表时间：
2016-07-01
影响因子：
3.2
通讯作者：
Ohlen, Joakim
中科院分区：
文献类型：
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作者：
Hakanson, Cecilia;Sandberg, Jonas;Ohlen, Joakim
尽管与姑息治疗需求相关的多种、限制生命的疾病发生率很高，但无家可归者是姑息治疗环境中服务最不足且很少遇到的群体之一。相反，他们经常死于不具备姑息治疗能力的护理场所。在这项定性单案例研究中，我们从瑞典无家可归者支持之家工作人员的角度探讨了姑息治疗的条件和实践。解释性描述指导了研究过程，数据是通过与工作人员分组、单独和成对地反复进行反思性对话而生成的。研究结果揭示了一种以人为本的姑息治疗方法，其基础是对人的健康/疾病和健康素养的理解，以及这与无家可归者的生活有何关系和决定因素。这种方法有四种模式：建立信任和家庭般的关系，重新赋予人尊严，重新考虑有关疾病和死亡的沟通，以及重新定义灵活务实的护理解决方案。
Despite high frequencies of multiple, life-limiting conditions relating to palliative care needs, people who are homeless are one of the most underserved and rarely encountered groups in palliative care settings. Instead, they often die in care places where palliative competence is not available. In this qualitative single-case study, we explored the conditions and practices of palliative care from the perspective of staff at a Swedish support home for homeless people. Interpretive description guided the research process, and data were generated from repeated reflective conversations with staff in groups, individually, and in pairs. The findings disclose a person-centered approach to palliative care, grounded in the understanding of the person's health/illness and health literacy, and how this is related to and determinant on life as a homeless individual. Four patterns shape this approach: building trustful and family-like relationships, re-dignifying the person, re-considering communication about illness and dying, and re-defining flexible and pragmatic care solutions.