Building Strong Clinician-Researcher Collaborations for Successful Hospice and Palliative Care Research.

Building Strong Clinician-Researcher Collaborations for Successful Hospice and Palliative Care Research.
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DOI:
10.1097/njh.0000000000000818
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发表时间:
2022-02-01
期刊:
Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association
影响因子:
--
通讯作者:
Carpenter JG
Carpenter JG
中科院分区:
其他
文献类型:
--
作者:
Hurley SL;DeSanto-Madeya S;Fortney CA;Izumi S;Phongtankuel V;Carpenter JG

文献摘要

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临终关怀和姑息治疗研究旨在建立一个知识库,以指导为重病患者提供高质量的护理,并提高他们的生活质量。考虑到其对患者和家庭护理人员的经验的关注,临终关怀和姑息治疗研究活动主要发生在现实世界的临床环境中,重病患者及其家庭护理人员接受护理(例如,疗养院、诊所、住院部)。在这些环境中进行研究会带来许多挑战,因为研究人员、临床医生和管理人员可能有不同的优先级,而且科学控制也很困难。因此,临床医生-研究人员-管理人员在规划和开展研究方面的合作对于成功的临终关怀和姑息治疗研究至关重要。为了实现有效的协作,临床医生、研究人员和研究中心管理员必须被视为平等的合作伙伴。每个合作者带来了他们独特的专业知识,知识和技能,当结合起来可以加强科学的严谨性,可行性和项目的成功,以及有研究成果更可转化为现实世界的实践。然而,很少有指导存在,给可行的步骤,建立合作伙伴关系的临终关怀和姑息治疗研究人员。本文的目的是描述通过研究生命周期的五个阶段形成成功的临床医生-研究人员-管理人员合作的过程:想法产生,伙伴关系,提案撰写,研究过程和传播。范例来自作者进行合作研究的经验,并强调成功的临终关怀和姑息治疗合作的策略和资源。
Hospice and palliative care research aim to build a knowledge base to guide high-quality care for people with serious illness and improve their quality of life. Considering its focus on patient and family caregiver’s experiences, hospice and palliative care research activities primarily take place in real-world clinical settings where seriously ill patients and their family caregivers receive care (e.g., nursing homes, clinics, inpatient units). Conducting research in these settings poses many challenges because researchers, clinicians, and administrators may have different priorities—and scientific control is difficult. Therefore, clinician-researcher-administrator collaboration in planning and conducting studies is critical for successful hospice and palliative care research. For an effective collaboration, clinicians, researchers, and site administrators must be considered equal partners. Each collaborator brings their unique expertise, knowledge, and skills that when combined can strengthen scientific rigor, feasibility, and success of the project, as well as have study outcomes be more translatable to real-world practice. However, little guidance exists to give actionable steps to build collaborative partnerships for hospice and palliative care researchers. The purpose of this paper is to describe the process of forming successful clinician-researcher-administrator collaborations through five phases of the research lifecycle: idea generation, partnership, proposal writing, research process, and dissemination. Exemplars are drawn from the authors’ experiences conducting collaborative research and highlight strategies and resources for successful hospice and palliative care collaborations.