Quality of Life and Functional Vision in Children with Glaucoma
Quality of Life and Functional Vision in Children with Glaucoma
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DOI：
10.1016/j.ophtha.2017.02.024
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发表时间：
2017-07-01
期刊：
影响因子：
13.7
通讯作者：
Papadopoulos, Maria
中科院分区：
文献类型：
--
作者：
Dahlmann-Noor, Annegret;Tailor, Vijay;Papadopoulos, Maria
目的：探讨青光眼对16岁以下儿童功能性视力的影响以及对视力相关(VR)和健康相关(HR)生活质量的影响。设计：横断面观察性研究。标准差[SD]，4.56岁)与青光眼及其父母。方法：完成了3个有效的工具，以评估(1)功能视觉能力(FVA)的儿童卡迪夫儿童视觉能力问卷(CVAQC)，(2)VR生活质量(IVI-C)的儿童视力受损的影响(IVI-C)，(3)HR生活质量(PedsQL)版本4.0。主要观察指标：卡迪夫儿童视觉能力问卷，IVI-C和PedsQL评分。结果：青光眼儿童的FVA，VR QL和HR QL得分：中位数AQC，CVQC，和HR QL-1.24(四分位数范围[IQR]，-2.2至-0.11；平均IVI-C评分为67.3(SD，14.4；正常VR QOL，96)；PedsQL自我报告中值为78.8(IQR，67.4-90.2)；家长报告，71.2(IQR，55.7-85.8)；家庭影响评分，74.3(IQR，56.9-88.5；正常HR QL，100)。PedsQL的心理社会分值低于生理分值。年龄较大的儿童在CVAQC、IVI-C和PedsQL上的损害程度低于年龄较小的儿童。结论：青光眼及其治疗对儿童的FVA和QOL有显著影响。青光眼儿童报告的HR QOL评分与患有严重先天性心脏缺陷、接受肝移植或患有急性淋巴细胞性白血病的儿童相似。(C)2017年度美国眼科学会
Purpose: To evaluate the effect of glaucoma on functional vision and on vision-related (VR) and health-related (HR) quality of life (QoL) in children up to 16 years of age.Design: Cross-sectional observational study.Participants: One hundred nineteen children 2 to 16 years of age (mean age, 9.4 years; standard deviation [SD], 4.56 years) with glaucoma and their parents.Methods: Completion of 3 validated instruments for children to assess (1) functional visual ability (FVA) with the Cardiff Visual Ability Questionnaire for Children (CVAQC), (2) VR QoL with the Impact of Vision Impairment for Children (IVI-C), and (3) HR QoL with the Pediatric Quality of Life Inventory (PedsQL) version 4.0.Main Outcome Measures: Cardiff Visual Ability Questionnaire for Children, IVI-C, and PedsQL scores.Results: Scores for FVA, VR QoL, and HR QoL were reduced in children with glaucoma: median CVAQC score, -1.24 (interquartile range [IQR], -2.2 to -0.11; range, -3.00 higher visual ability to +2.80 lower visual ability); mean IVI-C score, 67.3 (SD, 14.4; normal VR QoL, 96); median PedsQL self-report, 78.8 (IQR, 67.4-90.2); parent report, 71.2 (IQR, 55.7-85.8); and family impact score, 74.3 (IQR, 56.9-88.5; normal HR QoL, 100). Psychosocial subscores were lower than physical subscores on the PedsQL. Older children reported less impairment on CVAQC, IVI-C, and PedsQL than younger children. Parents reported greater impact on their child's HR QoL than children reported themselves.Conclusions: Glaucoma and its management have a marked impact on a child's FVA and QoL. Children with glaucoma report HR QoL scores similar to those described by children with severe congenital cardiac defects, who have undergone liver transplants, or who have acute lymphoblastic leukemia. (C) 2017 by the American Academy of Ophthalmology