Closing the loop: action research in a multimodal hereditary cancer patient conference is an effective tool to assess and address patient needs.
Closing the loop: action research in a multimodal hereditary cancer patient conference is an effective tool to assess and address patient needs.
复制标题
DOI：
10.1007/s13187-012-0373-9
复制
发表时间：
2012-06
影响因子：
1.6
通讯作者：
Blazer, Kathleen R.
中科院分区：
文献类型：
--
作者：
Espenschied, Carin R.;MacDonald, Deborah J.;Culver, Julie O.;Sand, Sharon;Hurley, Karen;Banks, Kimberly C.;Weitzel, Jeffrey N.;Blazer, Kathleen R.
本文介绍了在患者会议中使用行动研究来提供最新的遗传性癌症信息，探索患者和家庭成员的需求和遗传性癌症风险评估（GCRA）相关的经验，就如何改进GCRA过程征求反馈，并为未来的研究工作提供信息。受邀者在City of Hope或合作机构完成了GCRA，并有BRCA突变或强烈的乳腺癌个人或家族史。行动研究活动促进了调查，圆桌讨论和反思时间，让参与者，教师和研究人员在多个周期的相互反馈。多模式行动研究设计有效地吸引了与会者分享他们的经验，需求和改进GCRA过程的想法。与会者表示，他们高度重视所提供的信息和资源，并希望今后举行类似的会议。在患者会议中使用行动研究是一种创新和有效的方法，可以提供健康教育，获取经验，识别和帮助解决高危患者及其家属的需求，并产生研究假设。获得的见解产生了宝贵的反馈，为临床护理，未来的卫生服务研究和继续医学教育（CME）活动提供信息。这些方法在其他实践环境中也可能有效。
This paper describes the use of action research in a patient conference to provide updated hereditary cancer information, explore patient and family member needs and experiences related to genetic cancer risk assessment (GCRA), elicit feedback on how to improve the GCRA process, and inform future research efforts. Invitees completed GCRA at City of Hope or collaborating facilities and had a BRCA mutation or a strong personal or family history of breast cancer. Action research activities were facilitated by surveys, roundtable discussions, and reflection time to engage participants, faculty, and researchers in multiple cycles of reciprocal feedback. The multimodal action research design effectively engaged conference participants to share their experiences, needs, and ideas for improvements to the GCRA process. Participants indicated that they highly valued the information and resources provided and desired similar future conferences. The use of action research in a patient conference is an innovative and effective approach to provide health education, elicit experiences, identify and help address needs of high-risk patients and their family members, and generate research hypotheses. Insights gained yielded valuable feedback to inform clinical care, future health services research, and Continuing Medical Education (CME) activities. These methods may also be effective in other practice settings.
登录
查看更多内容
影响因子：
105.7
作者：
Meyer, J
通讯作者：
Meyer, J
影响因子：
2.7
作者：
Gresty, Karen;Skirton, Heather;Evenden, Andrew
通讯作者：
Evenden, Andrew
影响因子：
2.2
作者：
Metcalfe, Alison;Werrett, Julie;Clifford, Collette
通讯作者：
Clifford, Collette
影响因子：
3.5
作者：
Metcalfe, KA;Liede, A;Narod, SA
通讯作者：
Narod, SA
影响因子：
1.9
作者：
MacDonald, Deborah J.;Sarna, Linda;Ferrell, Betty
通讯作者：
Ferrell, Betty