Assessment of Adaptive Engagement and Support Model for People With Chronic Health Conditions in Online Health Communities: Combined Content Analysis
Assessment of Adaptive Engagement and Support Model for People With Chronic Health Conditions in Online Health Communities: Combined Content Analysis
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DOI：
10.2196/17338
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发表时间：
2020-07-07
影响因子：
7.4
通讯作者：
Bhowmick, Amrita
中科院分区：
文献类型：
--
作者：
Green, Brian M.;Van Horn, Katelyn Tente;Bhowmick, Amrita
背景资料：随着社交媒体的普及，在线健康社区（OHC）是促进慢性健康状况患者之间信息共享和支持的重要工具。重要的是，OHC提供了关于具有特定健康状况的人的生活经历的对话的见解。鲜为人知的是，OHCs的方面，是重要的，以保持安全和富有成效的对话，支持health.Objective：本研究旨在评估提供社会支持和积极适度的OHCs中的作用，根据自适应参与模型开发和管理。本研究还旨在确定该模型的关键要素，是中央的发展，维护和适应OHCs的人与慢性health conditions.Methods：本研究采用了内容分析相结合，混合方法的方法，分析抽样的Facebook帖子评论从6 OHCs了解如何关键方面的自适应参与模型促进不同类型的社会支持。本研究中包括的OHC适用于多发性硬化症、偏头痛、肠易激综合征、类风湿性关节炎、肺癌和前列腺癌患者。在分析中采用了探索性方法，将初始代码按主题分类，然后使用Dedoose定性分析软件工具通过主题网络分析加以确认。主题类别进行了比较的相似性和差异，为每个6 OHC和主题discussed.Results：数据的影响和参与的Facebook帖子和分析的样本的5881评论表明，慢性健康状况的人希望从事网络和找到价值的支持和与他人分享他们的经验。这些Facebook帖子中的大多数评论都是对生活在同样健康状况下的其他人的社会支持（3405/5881，57.89%）。在带有支持成分的评论中，社区成员验证他人知识或经验的评论最常见（1587/3405，46.61%），其次是同情和理解的表达（1089/3405，31.98%）。即使是在有更多事实内容的帖子中，例如保险问题，用户评论仍然经常表达对他人的支持（80/213，37.5%）。结论：对这种OHC适应性参与模式的分析表明，社会支持、参与、和适度-可以有效地用于为患有慢性健康状况的个人提供丰富和动态的社区体验。社会支持以多种方式表现出来，包括分享信息或验证他人分享的信息、同理心的表达以及与他人分享鼓励性的言论。
Background: With the pervasiveness of social media, online health communities (OHCs) are an important tool for facilitating information sharing and support among people with chronic health conditions. Importantly, OHCs offer insight into conversations about the lived experiences of people with particular health conditions. Little is known about the aspects of OHCs that are important to maintain safe and productive conversations that support health.Objective: This study aimed to assess the provision of social support and the role of active moderation in OHCs developed in accordance with and managed by an adaptive engagement model. This study also aimed to identify key elements of the model that are central to the development, maintenance, and adaptation of OHCs for people with chronic health conditions.Methods: This study used combined content analysis, a mixed methods approach, to analyze sampled Facebook post comments from 6 OHCs to understand how key aspects of the adaptive engagement model facilitate different types of social support. OHCs included in this study are for people living with multiple sclerosis, migraine, irritable bowel syndrome, rheumatoid arthritis, lung cancer, and prostate cancer. An exploratory approach was used in the analysis, and initial codes were grouped into thematic categories and then confirmed through thematic network analysis using the Dedoose qualitative analysis software tool. Thematic categories were compared for similarities and differences for each of the 6 OHCs and by topic discussed.Results: Data on the reach and engagement of the Facebook posts and the analysis of the sample of 5881 comments demonstrate that people with chronic health conditions want to engage on the web and find value in supporting and sharing their experiences with others. Most comments made in these Facebook posts were expressions of social support for others living with the same health condition (3405/5881, 57.89%). Among the comments with an element of support, those where community members validated the knowledge or experiences of others were most frequent (1587/3405, 46.61%), followed by the expression of empathy and understanding (1089/3405, 31.98%). Even among posts with more factual content, such as insurance coverage issues, user comments still had frequent expressions of support for others (80/213, 37.5%).Conclusions: The analysis of this OHC adaptive engagement model in action shows that the foundational elements-social support, engagement, and moderation-can effectively be used to provide a rich and dynamic community experience for individuals with chronic health conditions. Social support is demonstrated in a variety of ways, including sharing information or validating information shared by others, expressions of empathy, and sharing encouraging statements with others.