The Cooperative Familial Registry for Breast Cancer Studies: design and first year recruitment rates in Ontario.
The Cooperative Familial Registry for Breast Cancer Studies: design and first year recruitment rates in Ontario.
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乳腺癌研究合作家族登记处：安大略省的设计和第一年招募率。
DOI：
10.1016/s0895-4356(00)00263-8
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发表时间：
2001
影响因子：
7.2
通讯作者：
OntarioCancerGeneticsNetwork
中科院分区：
文献类型：
--
作者：
Sutherland,HJ;Lacroix,J;Knight,J;Andrulis,IL;Boyd,NF;OntarioCancerGeneticsNetwork
安大略省家族性乳腺癌登记处(OFBCR)是乳腺癌研究合作家族性登记处的六个国际站点之一，它收集家族史、流行病学信息和来自家庭(具有不同家族性风险模式)的血液样本，以研究乳腺癌的病因。为了邀请2361名居住在安大略省的女性乳腺癌患者参加登记，寄出了一个包裹，其中包括一份家族史问卷。采用了几种不同的邮寄和后续策略。总体而言，应答率为67%。最好的回复(74%)是在10天后用明信片跟进我们的介绍性一揽子信息，并在几周后打电话。鉴于该项目的设计涉及患者及其家属的相当大的承诺，我们对这些妇女的积极反应印象深刻。
The Ontario Familial Breast Cancer Registry (OFBCR) is one of six international sites of the Cooperative Familial Registry for Breast Cancer Studies collecting family history, epidemiologic information, and blood samples from families (with various patterns of familial risk) for the purpose of studying the etiology of breast cancer. To invite 2361 female breast cancer patients residing in Ontario to take part in the Registry, a package was sent that included a Family History Questionnaire. Several variations of mailing and follow-up strategies were employed. Overall, the response rate was 67%. The best response (74%) was achieved by following up our introductory package of information with a postcard 10 days later and a telephone call several weeks thereafter. Given the design of the project, which involves a considerable commitment on the part of both patients and their family members, we are impressed by the positive response of these women.