Constrained but not determined by stigma: Resistance by African American women living with HIV
Constrained but not determined by stigma: Resistance by African American women living with HIV
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DOI：
10.1300/j013v44n03_01
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发表时间：
2006-01-01
期刊：
影响因子：
1.6
通讯作者：
Stevens, Patricia E.
中科院分区：
文献类型：
--
作者：
Buseh, Aaron G.;Stevens, Patricia E.
背景：艾滋病污名被广泛认为是有效预防、降低风险、检测和治疗艾滋病的主要障碍。研究是迫切需要预测，了解，并打击艾滋病毒的耻辱在非洲裔美国人的文化背景，因为非洲裔美国人有最高的艾滋病毒发病率，艾滋病毒/艾滋病患病率，和艾滋病毒死亡率。目的：本分析的目的是探讨非洲裔美国妇女的叙述艾滋病毒感染者，了解他们如何经历和应对艾滋病毒的耻辱。方法：29名感染艾滋病毒的非洲裔美国妇女参加了这项纵向定性研究。每个人都讲述了她的生活，因为艾滋病毒诊断在十个开放式采访进行了两年的过程。A multi-staged narrative analysis was used.Findings：艾滋病毒的耻辱，这些非洲裔美国妇女经历了多个层面上，表现为存在的绝望，在社会上回避和冷漠，和制度上的忽视。虽然参与者受到这种多层次的霸权文化对艾滋病毒的负面影响的限制，但他们拒绝被它所决定。他们的故事表明他们如何抵制耻辱。随着时间的推移，通过争取支持，面对疾病，披露只有在战略时期，重新定义耻辱的无知，并成为倡导者，他们能够挑战和反对的耻辱和耻辱，艾滋病毒感染带来了他们的lives.Conclusion：在这项研究中描述的抗耻辱的元素可能是起点，设计参与性干预措施，并与非洲裔美国妇女感染艾滋病毒。
Background: HIV stigma is widely regarded as a major obstacle to effective HIV prevention, risk reduction, testing, and treatment. Research is urgently needed to anticipate, understand, and combat HIV stigma in the African American cultural context because African Americans have the highest HIV incidence, HIV/AIDS prevalence, and HIV mortality.Purpose: The purpose of this analysis was to explore African American women's narratives of living with HIV to understand how they experienced and responded to HIV stigma.Method: Twenty-nine HIV-infected-African American women participated in this longitudinal qualitative study. Each narrated her life since HIV diagnosis in ten open-ended interviews conducted over the course of two years. A multi-staged narrative analysis was used.Findings: HIV stigma, which these African American women experienced on multiple levels, manifested internally as existential despair, socially as shunning and callousness, and institutionally as disregard. While participants were constrained by this multi-layered hegemonic cultural negativity about HIV, they refused to be determined by it. Their stories demonstrate how they resisted stigma. Over time, by enlisting support, facing the illness, disclosing only at strategic times, redefining stigma as ignorance, and becoming advocates, they were able to challenge and oppose the shame and discredit that HIV infection had brought into their lives.Conclusion: The elements of stigma resistance described in this study may be starting points for designing participatory interventions for and with African American women living with HIV.