Caregiver's burden of patients 3 years after stroke assessed by a novel caregiver burden scale
Caregiver's burden of patients 3 years after stroke assessed by a novel caregiver burden scale
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DOI：
10.1016/s0003-9993(96)90164-1
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发表时间：
1996-02-01
影响因子：
4.3
通讯作者：
Annerstedt, L
中科院分区：
文献类型：
--
作者：
Elmstahl, S;Malmberg, B;Annerstedt, L
目的：评估初发卒中患者3年后照顾者的负担，并检验新的照顾者负担量表(CB量表)的效度和可靠性。设计：对35名首次进入急诊医疗单位的初诊的初发卒中患者(平均年龄82岁)进行为期3年的纵向社区随访研究。对150名患者(平均年龄77岁)进行了CB量表的有效性研究：83名痴呆症患者被评估为需要集体生活，67名中风患者来自普通老年日托病房。对来自同一病房的23名门诊中风患者(平均年龄72岁)进行了可靠性研究。方法：采用22个条目的CB量表，用于不同类型的照顾者负担，以及神经质和外向量表(艾森克个性问卷)和生活质量量表(II条目)。分别于治疗前和治疗3年后用6项量表评定患者的日常生活活动能力，结果：CB量表的信度和效度。结果：CB量表的因素分析显示，除环境因素外，一般紧张、孤立、失望、情绪投入和环境5项指标的kappa值为0.89~1.00，Cronbach‘sα为0.70~0.87。更高的负担与更密切的关系有关，而与生活状况无关。当将ADL分为三分时，发现ADL改善最大的患者的照顾者负担最高。患者的外向程度和生活质量与照顾者负担呈负相关，分别为0.46(p<；0.05)和0.59(p<；.01)。结论：CB量表是评估照顾者负担的有效和可靠的工具。为了改善照顾者的情况，必须考虑患者的个性特征，如外向、生活质量感觉和疾病的进展。(C)1996年由美国康复医学大会和美国物理医学和康复学会主办。
Objective: To assess burden of caregivers to stroke patients three year after a primary stroke and to test validity and reliability of a novel caregiver burden scale (CB scale).Design: A longitudinal community-based 3-year follow-up study of 35 consecutive primary stroke patients initially admitted to an Acute Medical Unit (mean age 82 yr). The validity of the CB scale was studied in 150 patients (mean age 77 yr):83 demented outpatients assessed for need of group living and 67 outpatients with stroke from a general geriatric day-care unit. Reliability was studied in another 23 outpatients (mean age 72 yr) with stroke from the same unit.Methods: A 22-item CB scale for different types of caregiver burden and scales for neuroticism and extroversion (Eysenck Personality Inventory) and quality of Life (Ii-item scale). Activities of daily life were assessed by a 6-item scale, initially and 3 years later.Outcome Measure: Reliability and validity of the CB scale. Improvements of activities of daily life of stroke patients.Results: Factor analyses of the CB scale gave five indices-general strain, isolation, disappointment, emotional involvement, and environment-having good kappa values, .89 to 1.00 and Cronbach's alpha, .70 to .87, except for environment. A higher burden was related to a closer relationship but not to the living situation. The highest caregiver burden was found among patients showing the greatest improvements of ADL, when divided into tertiles. The patient's degree of extroversion and quality of life were negatively correlated to caregiver burden, .46 (p < .05) and .59 (p < .01).Conclusions: The CB scale proved to be a valid and reliable instrument to assess caregiver burden. To improve the caregiver situation, individual patient personality characteristics, like extroversion, feeling of quality of life, and progression of the disease, must be considered. (C) 1996 by the American Congress of Rehabilitation Medicine and the American Academy of Physical Medicine and Rehabilitation.