Participatory design with children in the development of a support system for patient-centered care in pediatric oncology
Participatory design with children in the development of a support system for patient-centered care in pediatric oncology
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DOI：
10.1016/j.jbi.2007.10.004
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发表时间：
2008-08-01
影响因子：
4.5
通讯作者：
Vatne, Torun M.
中科院分区：
文献类型：
--
作者：
Ruland, Cornelia M.;Starren, Justin;Vatne, Torun M.
为患有严重疾病的儿童开发软件带来了许多设计挑战。在本文中，我们描述了用于开发SISOM的参与式设计方法，SISOM是一个针对7-12岁癌症儿童的支持系统，旨在帮助儿童以儿童友好，年龄调整的方式引出和报告他们的症状/问题，并协助临床医生在护理点处理和整合儿童报告的症状和问题。本文描述了为重病儿童开发临床支持工具的特殊设计挑战，随后介绍了我们用来应对这些挑战的参与式设计技术。健康儿童和癌症儿童积极参与设计过程的不同阶段。我们描述了孩子们如何对系统界面的图形设计做出贡献；选择系统中使用的易于理解和儿童友好的术语；标志和图形表示；以及它的可用性。所采用的方法有助于我们显著改善和适应儿童认知和情感发展阶段的SISOM。在设计中与儿童作为合作伙伴一起工作，也为儿童在参与式设计中可以发挥的作用提供了重要的见解，这可能对其他希望为患病儿童设计支持应用程序的系统开发人员有所帮助。孩子们有非常有创意的设计想法，大大改进了软件。然而，为重病儿童开发系统还需要心理和教学见解以及设计和可用性专门知识。这就限制了儿童作为设计伙伴的角色。(C) 2007爱思唯尔公司版权所有。
Developing software for children with severe illness poses a number of design challenges. In this paper we describe participatory design methods used in the development of SISOM, a support system for children with cancer age 7-12 to help children elicit and report their symptoms/problems in a child-friendly, age-adjusted manner, and to assist clinicians at the point of care in addressing and integrating children's reported symptoms and problems in patient care. The particular design challenges in the development of a clinical support tool for seriously ill children are described, followed by the participatory design techniques we used to meet these challenges. Healthy children and children with cancer participated actively in different stages of the design process. We describe how children contributed to the graphical design of the system's interface; selection of understandable, child-friendly terms used in the system; iconic and graphical representations; and its usability. The methods applied helped us to significantly improve and adapt SISOM to children's cognitive and emotional developmental stage. Working with children as partners in the design also provided important insights into the role children can play in participatory design that may be helpful for other system developers who wish to design support applications for ill children. Children had very creative design ideas that considerably improved the software. However, system development for seriously ill children also requires psychological and pedagogical insights and design and usability expertise. This limits the role children can play as full design partners. (C) 2007 Elsevier Inc. All rights reserved.