Parent Experiences in the NICU and Transition to Home.

Parent Experiences in the NICU and Transition to Home.
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DOI:
10.3390/ijerph20116050
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发表时间:
2023-06-04
影响因子:
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通讯作者:
Dusing, Stacey C
Dusing, Stacey C
中科院分区:
综合性期刊3区
文献类型:
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作者:
Spence, Christine M;Stuyvenberg, Corri L;Kane, Audrey E;Burnsed, Jennifer;Dusing, Stacey C

文献摘要

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12个在妊娠29周出生的婴儿的家庭分享了他们在NICU和过渡回家期间的经历。家长在NICU出院后6-8周接受了采访,包括一些在新冠肺炎大流行急性期的家长。关于NICU中父母经历的研究结果集中在应对亲婴分离、社交隔离、沟通困难、对早产儿的有限了解以及心理健康挑战方面的挑战。家长们还讨论了存在的支持和他们希望存在的支持,以及新冠肺炎对他们体验的影响。在过渡到家的过程中,主要的经历包括过渡的突发性、对出院准备的焦虑以及失去护理人员的支持。在家里的头几周里,父母们表达了喜悦的焦虑和焦虑,特别是在喂养方面。新冠肺炎大流行限制了对父母的情感、信息和身体支持,并导致新生儿重症监护病房中其他婴儿父母的相互支持有限。NICU中早产儿的父母面临着多种压力源,因此照顾父母的心理健康至关重要。NICU工作人员需要解决影响沟通和亲子关系的后勤障碍和家庭优先事项。对于早产儿的父母来说,提供多种交流机会、参与照看活动和会见其他家庭可能是重要的支持和知识来源。
Families (n = 12) with infants born at <29 weeks gestation shared their experiences while in the NICU and transitioning home. Parents were interviewed 6–8 weeks after NICU discharge, including some during the acute phase of the COVID-19 pandemic. Findings regarding the parent experience in the NICU were focused around challenges navigating parent-infant separation, social isolation, communication difficulties, limited knowledge of preterm infants, mental health challenges. Parents also discussed supports that were present and supports they wished were present, as well as the impact of COVID-19 on their experiences. In the transition to home, primary experiences included the sudden nature of the transition, anxiety around discharge preparation, and the loss of the support from nursing staff. During the first few weeks at home, parents expressed joy and anxiety, particularly around feeding. The COVID-19 pandemic limited emotional, informational, and physical support to parents and resulted in limited mutual support from other parents of infants in the NICU. Parents of preterm infants in the NICU present with multiple stressors, rendering attending to parental mental health crucial. NICU staff need to address logistical barriers and familial priorities impacting communication and parent-infant bonding. Providing multiple opportunities for communication, participating in caretaking activities, and meeting other families can be important sources of support and knowledge for parents of very preterm infants.