Interventions for children with fetal alcohol spectrum disorders (FASDs): Overview of findings for five innovative research projects
Interventions for children with fetal alcohol spectrum disorders (FASDs): Overview of findings for five innovative research projects
复制标题
DOI：
10.1016/j.ridd.2009.02.003
复制
发表时间：
2009-09-01
影响因子：
3.1
通讯作者：
Bertrand, Jacquelyn
中科院分区：
文献类型：
--
作者：
Bertrand, Jacquelyn
众所周知，产前接触酒精会对发育中的胎儿造成损害，导致一系列被称为胎儿酒精谱系障碍（FASDs）的疾病。尽管我们对与fasd相关的缺陷和紊乱的理解还远未完成，但有一致的发现表明这些是严重的终身残疾，特别是当这些残疾是由中枢神经系统损伤引起的。直到最近，针对fasd患者的具体干预措施的信息和策略都是从对其他残疾人使用的干预措施中收集的，以及从父母和临床医生通过反复试验或通过非正式网络分享的实践智慧中收集的。虽然提供的信息有限，但这些干预措施的实施没有经过系统或科学的评估。本文的目的是简要概述为fasd患者开发的一般干预框架，以及在该框架内进行的五项具体干预研究的方法和一般结果。这些研究评估了美国五个不同地区的五种不同的干预措施，涉及不同的FASD人群。尽管如此，所有参与者的目标行为或技能都有所改善，其中有四项研究在治疗结果上取得了统计学意义。从这五项干预措施中得出的重要教训可能解释成功：包括父母教育或培训，教儿童他们通常通过观察或抽象学习的特定技能，以及融入现有的治疗系统。这些研究对处理fasd的家庭的一个主要含义是，现在有可用的干预措施可以满足他们孩子的需求，并且可以向干预机构（如学校、社会服务和精神卫生提供者）提供科学验证和有效的干预措施。在FASD研究和临床服务领域，家庭报告的一个共同主题是临床医生和专业人员不愿诊断他们的孩子，因为没有已知的有效治疗方法。这五项研究的结果通过证明几种干预措施已被证明可以改善fasd患者及其家庭的生活，消除了这种担忧。Elsevier Ltd.出版。
It is well established that prenatal exposure to alcohol causes damage to the developing fetus, resulting in a spectrum of disorders known as fetal alcohol spectrum disorders (FASDs). Although our understanding of the deficits and disturbances associated with FASDs is far from complete, there are consistent findings indicating these are serious, lifelong disabilities-especially when these disabilities result from central nervous system damage. Until recently, information and strategies for interventions specific to individuals with FASDs have been gleaned from interventions used with people with other disabilities and from the practical wisdom gained by parents and clinicians through trial and error or shared through informal networks. Although informative to a limited degree, such interventions have been implemented without being evaluated systematically or scientifically. The purpose of this article is to provide a brief overview of a general intervention framework developed for individuals with FASDs and the methods and general findings of five specific intervention research studies conducted within this framework. The studies evaluated five different interventions in five diverse locations in the United States, with different segments of the FASD population. Nonetheless, all participants showed improvement in the target behaviors or skills, with four studies achieving statistical significance in treatment Outcomes. important lessons emerged from these five interventions that may explain Success: including parent education or training, teaching children specific skills they would usually learn by observation or abstraction, and integration into existing systems of treatment. A major implication of these research studies for families dealing with FASDs is that there are now interventions available that can address their children's needs and that can be presented as scientifically validated and efficacious to intervention agents Such as schools, social services, and mental health providers. In the field of FASD research and clinical service, a common theme reported by families has been that clinicians and professionals have been reluctant to diagnose their children because there were no known effective treatments. Results of these five Studies dispel that concern by demonstrating several interventions that have been shown to improve the lives of individuals with FASDs and their families. Published by Elsevier Ltd.