Psychosocial risk in families of infants undergoing surgery for a serious congenital heart disease
Psychosocial risk in families of infants undergoing surgery for a serious congenital heart disease
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DOI：
10.1017/s1047951113000760
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发表时间：
2014-08-01
影响因子：
1
通讯作者：
Anderson, Vicki A.
中科院分区：
文献类型：
--
作者：
Hearps, Simone J.;McCarthy, Maria C.;Anderson, Vicki A.
目的：本研究的目的是探讨接受先天性心脏病手术的婴儿家庭的急性心理社会风险，其次，探讨产前与产后诊断的心理社会影响。方法：研究样本包括29名儿童的39名照顾者（28名母亲），这些儿童被诊断患有先天性心脏病，在出生后的前4周内需要手术。社会心理风险进行了测量，使用社会心理评估工具，这是适应，包括四个新的项目检查婴儿的风险因素，即睡眠，喂养，哭泣，结合困难。父母的心理社会风险在孩子手术后4周内进行测量，并分为三个层次的框架：普遍，目标和临床风险。结果：在总样本中，61.5%的父母被归类为通用型，即风险最低; 35.9%为目标型，2.6%为临床型。家庭内父母总心理社会评估工具评分的相关性不显着，有没有家庭之间的婴儿接受产后与产前诊断或单心室与双心室修复没有差异。线性回归发现，较高的父母教育显着预测较低的总心理社会评估工具得分。结论：研究结果表明，尽管大多数父母适应了婴儿严重心脏病手术的急性压力，但其余38.5%的父母报告了与较高的情绪困扰率相关的心理社会风险增加，这可能会影响父母的生活质量和最佳养育能力。接受先天性心脏病手术的儿童的父母的心理社会风险分布与其他严重儿科诊断的儿童的父母的分布一致。
Objective: The aim of this study was to explore the acute psychosocial risk in families with infants undergoing surgery for a congenital heart disease and, secondarily, to explore the psychosocial impact of antenatal versus post-natal diagnoses. Method: The study sample comprised 39 caregivers (28 mothers) of 29 children diagnosed with a congenital heart disease and requiring surgery within the first 4 weeks of life. Psychosocial risk was measured using the Psychosocial Assessment Tool, which was adapted to include four novel items examining infant risk factors, namely, sleeping, feeding, crying, and bonding difficulties. Parents' psychosocial risk was measured within 4 weeks after their child's surgery and stratified into a three-tiered framework: Universal, Targeted, and Clinical risk. Results: Of the total sample, 61.5% of parents were classified as Universal, that is, at lowest risk; 35.9% as Targeted, and 2.6% as Clinical. The within-family parent total Psychosocial Assessment Tool score correlations were non-significant, and there were no differences between families of infants who received post-natal versus antenatal diagnosis or single ventricle versus biventricular repair. Linear regression found that a higher parent education significantly predicted a lower total Psychosocial Assessment Tool score. Conclusions: Findings indicate that, although the majority of parents adapt to the acute stress of surgery for a serious cardiac illness in their infant, the remaining 38.5% report an increased psychosocial risk associated with higher rates of emotional distress, which may impact on the parental quality of life and capacity for optimal parenting. The distribution of psychosocial risk in parents of children undergoing surgery for a congenital heart disease is consistent with that described for parents of children with other serious paediatric diagnoses.