A survey study of the attitudes and experiences of adults with intellectual disability regarding participation in research.
A survey study of the attitudes and experiences of adults with intellectual disability regarding participation in research.
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DOI：
10.1111/jir.12877
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发表时间：
2021-10
期刊：
影响因子：
--
通讯作者：
Project ETHICS Expert Panel Members
中科院分区：
文献类型：
--
作者：
Conroy NE;McDonald KE;Olick RS;Project ETHICS Expert Panel Members
从历史上看，智力残疾者在科学研究中受到剥削并被排除在外。为了使更多的智障成年人成为研究对象，我们试图了解他们对参与研究的兴趣以及影响他们自愿参与的因素，例如信任的核心价值。我们的调查测量了智力残疾成年人对一般研究和专门涉及智力残疾成年人的研究的态度，以及他们以前的研究经历、对研究人员的信任和对未来研究参与的兴趣。研究对象对研究持积极态度，对未来的参与机会有浓厚的兴趣，对研究人员的信任与两者呈正相关。“关于智力残疾成年人的研究非常重要”的信念也预示了参与者对未来研究参与的兴趣。研究结果表明，智力残疾成人支持智力残疾成人作为被调查者直接参与研究。与研究人员之间值得信赖的关系以及对研究的积极看法促进了这一群体的更大包容。
Historically, people with intellectual disability have been exploited in and excluded from scientific research. To facilitate greater representation of adults with intellectual disability as research respondents, we sought to understand their interest in research participation and factors affecting their willingness to volunteer to participate, such as the core value of trust. Our survey measured attitudes of adults with intellectual disability toward research in general and research specifically involving adults with intellectual disability as respondents, as well as their prior research experiences, trust of researchers, and interest in future research participation. Participants reported positive attitudes toward research and strong interest in future participation opportunities, and trust of researchers was positively correlated to both. The belief that ‘research about adults with intellectual disability is very important’ also predicted participants’ interest in future research participation. Our findings indicate that adults with intellectual disability support the direct involvement of adults with intellectual disability in research as respondents. Trustworthy rapport with researchers and positive views about research foster greater inclusion of this population.
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DOI：
10.1352/1944-7558-122.1.78
发表时间：
2017-01-01
影响因子：
2.1
作者：
McDonald, Katherine E.;Conroy, Nicole E.;Olick, Robert S.
通讯作者：
Olick, Robert S.
影响因子：
3.6
作者：
Feldman, M. A.;Bosett, J.;Burnham-Riosa, P.
通讯作者：
Burnham-Riosa, P.
DOI：
10.1080/13668250600876392
发表时间：
2006-09-01
影响因子：
1.3
作者：
Iacono, Teresa
通讯作者：
Iacono, Teresa
DOI：
10.1111/j.1365-2788.2011.01399.x
发表时间：
2011-05-01
影响因子：
3.6
作者：
Swaine, J.;Parish, S. L.;Atkins, L.
通讯作者：
Atkins, L.
DOI：
10.1111/jar.12067
发表时间：
2014-09
期刊：
Journal of applied research in intellectual disabilities : JARID
影响因子：
--
作者：
Krahn GL;Fox MH
通讯作者：
Fox MH