Patient and public involvement in reducing health and care research waste.
Patient and public involvement in reducing health and care research waste.
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DOI：
10.1186/s40900-018-0087-1
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发表时间：
2018-01-01
影响因子：
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通讯作者：
Wells, Bill
中科院分区：
文献类型：
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作者：
Minogue, Virginia;Cooke, Mary;Wells, Bill
简而言之：多达85%的健康研究被认为被浪费了，因为它没有发表或报道，设计很差，或者没有考虑到主题领域已经知道的东西。尽管英国在减少研究浪费方面做了大量工作，但患者和公众的作用还没有得到讨论。本文描述了一项关于患者在减少研究浪费中的作用的调查，该调查是减少医疗保健浪费的更大工作的一部分。研究发现，患者对减少研究浪费感兴趣。他们在研究中扮演的关键角色，例如共同申请资金、项目团队成员、共同研究人员，意味着他们有一定的共同责任来确保研究的高质量。这包括找出关于一个主题已经知道的东西，在寻求资金之前正确地进行研究设计，并在研究结束后发布和报告结果。认识到浪费发生在哪里是研究研究良好管理的一部分。摘要：背景：85%的卫生研究支出可能被浪费，原因是未能发表研究成果，发表的研究报告不明确，新的研究研究未能系统地审查同一主题领域的先前研究，研究设计和实施不力。在解决这个问题方面已经取得了很大的进展，但还没有考虑到患者和公众的作用。作为减少保健和护理浪费的更大计划的一部分，进行了一项小规模的调查，以了解患者在减少研究浪费方面的作用。研究表明，患者对这一问题特别感兴趣，尤其是在研究的优先顺序以及患者和公众的参与方面。结论患者在研究过程中扮演着关键角色，包括联合应用、项目管理或作为联合研究人员。这带来了确保高质量研究和物有所值的责任。认识到浪费做法的可能性的责任是进行和实施研究研究的一部分。
PLAIN ENGLISH SUMMARY: As much as 85 % of health research is believed to be wasted because it is not published or reported, the design is poor or does not consider what is already known in the topic area. Although a great deal of work has been done in the UK to reduce research waste, the role of patients and the public has not been discussed.This paper describes a survey, on the role of patients in reducing research waste, which was carried out as part of a larger piece of work on reducing waste in healthcare. The study found that patients were interested in reducing research waste. The key roles they play in research, for example being co-applicants for funding, members of project teams, co-researchers, means they have some shared responsibility for making sure the quality of research is high. This includes finding out what is already known about a topic and getting the study design right before seeking funding, publishing and reporting the results when the study is finished. Recognising where waste happens is part of good management of a research study.ABSTRACT: Background Eighty five per cent of health research expenditure is potentially wasted due to failure to publish research, unclear reporting of research that is published, and the failure of new research studies to systematically review previous research in the same topic area, poor study design and conduct. A great deal of progress has been made to address this issue but the role of patients and the public has not been considered.Main A small survey was undertaken, as part of a larger programme of work on reducing health and care waste, to understand the role of patients in reducing research waste. The study showed that patients are interested in this issue particularly in relation to the prioritisation of research and patient and public involvement.Conclusions Patients undertake key roles in the research process including co-applicancy, project management, or as co-researchers. This brings responsibility for ensuring high quality research and value for money. Responsibility for recognition of the potential for wasteful practices is part of the conduct and operation of research studies.