Quality of Life and associated factors in siblings of children with severe motor and intellectual disabilities: A cross-sectional study
Quality of Life and associated factors in siblings of children with severe motor and intellectual disabilities: A cross-sectional study
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严重运动和智力障碍儿童的兄弟姐妹的生活质量和相关因素：一项横断面研究
DOI：
10.1111/nhs.12755
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发表时间：
2020
影响因子：
2.7
通讯作者：
Akemi Matsuzawa
中科院分区：
文献类型：
--
作者：
Rie Wakimizu;Hiroshi Fujioka;Kaori Nishigaki;Akemi Matsuzawa
这项研究调查了日本患有严重运动和智力残疾儿童的兄弟姐妹的生活质量及其相关因素。参与者是 789 名残疾儿童的兄弟姐妹及其主要照顾者。我们使用 Kinder Lebensqualität Fragebogen 问卷来评估兄弟姐妹的生活质量。兄弟姐妹的平均年龄为12.21±3.07岁，平均生活质量评分为69.63±12.55分，高于一般同龄儿童人群。结果显示，以下因素有助于提高生活质量得分：与残疾儿童的关系更密切、年龄较小、主要照顾者的照顾负担较低、兄弟姐妹的出生顺序较晚（即弟弟妹妹）、家庭赋权程度较高以及兄弟姐妹的性别为女性。与残疾儿童的关系对兄弟姐妹的生活质量影响最大。我们的研究表明，需要针对整个家庭进行护理干预，以提高兄弟姐妹的生活质量。
This study examined quality of life and its associated factors in siblings of children with severe motor and intellectual disabilities in Japan. The participants were 789 siblings of children with a disability and their primary caregivers. We used the Kinder Lebensqualität Fragebogen questionnaire to assess the quality of life of siblings. The mean age of the siblings was 12.21 ± 3.07 years, and the mean quality of life score was 69.63 ± 12.55 points, which is higher than that of the general population of children of the same age. It was revealed that the following factors contributed to higher quality of life scores: a closer relationship with the child with a disability, younger age, the primary caregiver's lower care burden, later birth order of siblings (i.e., younger siblings), higher family empowerment, and female gender of siblings. The relationship with the child with a disability had the strongest influence on siblings' quality of life. Our study suggests the need for nursing interventions that focus on the whole family to enhance siblings' quality of life.