Ethical inclusion: Risks and benefits of research from the perspective of perinatal people with opioid use disorders who have experienced incarceration.
Ethical inclusion: Risks and benefits of research from the perspective of perinatal people with opioid use disorders who have experienced incarceration.
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DOI：
10.1371/journal.pone.0294604
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发表时间：
2023
期刊：
影响因子：
3.7
通讯作者：
Knittel, Andrea K.
中科院分区：
文献类型：
--
作者：
Reddy, Julia;Black, Kristel;Bazemore, Keia;Jordan, Kiva;Jackson, Jamie B.;Knittel, Andrea K.
研究伦理准则和对研究代表性的强调指导了边缘化群体的纳入，包括围产期阿片类药物使用障碍（OUD）患者和在美国经历监禁的人。然而，参与者对参与的风险和益处的见解没有得到充分考虑。本研究的目的是从经历过监禁的OUD孕妇/产后患者的角度研究参与研究的风险和益处。我们招募了有围产期监禁经验的人，他们目前正在怀孕或产后，年龄至少18岁。所有参与者均符合OUD的临床标准。我们的研究没有基于性别、种族或民族的排除标准。参与者要么目前被监禁在北卡罗来纳州妇女惩教所在罗利，北卡罗来纳州，美国或以前经历过围产期监禁，并从位于北卡罗来纳州围产期物质使用障碍治疗计划招募。在2021年9月至2022年4月之间，我们完成了12次对OUD孕妇/产后患者的采访，其中约一半目前被监禁，另一半最近有围产期监禁史。访谈通过Webex电话或视频进行。采访遵循脚本采访指南，平均持续一个小时。访谈记录进行了分析，使用严格和加速数据简化技术，以产生一个总体的主题框架。我们的分析确定了好处，包括自我表达的个人优势，帮助他人和促进变革，以及经济激励。风险包括污名化和违反保密规定，误解研究和宣传之间的区别，以及分享整个经验的能力有限。参与者确定的研究益处反映了其他边缘化人群的益处，尽管参与者确定的风险是新颖和微妙的。招募和同意应该超越规范性研究伦理委员会的协议语言，考虑参与者的观点。
Research ethics guidelines and emphasis on representation in research guide the inclusion of marginalized groups, including people with perinatal opioid use disorders (OUD) and people experiencing incarceration in the United States. However, insights from participants regarding the risks and benefits of participation are not adequately considered. The aim of this study was to examine the risks and benefits of research participation from the perspective of pregnant/postpartum people with OUD who have experienced incarceration. We recruited people who had experience with perinatal incarceration and were either currently pregnant or postpartum, and at least 18 years old. All participants met the clinical criteria for OUD. Our study did not have exclusion criteria based on gender, race, or ethnicity. Participants were either currently incarcerated at the North Carolina Correctional Institute for Women in Raleigh, North Carolina, United States or had previously experienced perinatal incarceration and were recruited from a perinatal substance use disorder treatment program located in North Carolina. Between 9/2021-4/2022, we completed 12 interviews with pregnant/postpartum people with OUD, approximately half who were currently incarcerated and half with a recent history of perinatal incarceration. Interviews were conducted via Webex phone or video. The interviews followed a scripted interview guide and lasted one hour on average. Interview transcripts were analyzed using the Rigorous and Accelerated Data Reduction technique to produce an overarching thematic framework. Our analysis identified benefits, including the personal advantage of self-expression, helping others and contributing to change, and financial incentives. Risks included stigma and breach of confidentiality, misunderstanding of the distinction between research and advocacy, and limited ability to share their whole experience. Participant-identified benefits of research mirrored those from other marginalized populations, though participant-identified risks were novel and nuanced. Recruitment and consent should move beyond normative research ethics committees protocol language to consider the perspectives of participants.
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影响因子：
2.2
作者：
Hammett，Daniel;Jackson，Lucy;Bramley，Ryan
通讯作者：
Bramley，Ryan
影响因子：
4.6
作者：
Morison, Tracy
通讯作者：
Morison, Tracy
影响因子：
0.9
作者：
Harris, James;Martin, Ruth Elwood;Ramsden, Vivian
通讯作者：
Ramsden, Vivian
DOI：
10.1177/1556264618797557
发表时间：
2018-12
期刊：
Journal of empirical research on human research ethics : JERHRE
影响因子：
--
作者：
Overstreet NM;Okuyan M;Fisher CB
通讯作者：
Fisher CB
影响因子：
--
作者：
Saunders B;Sim J;Kingstone T;Baker S;Waterfield J;Bartlam B;Burroughs H;Jinks C
通讯作者：
Jinks C