Reasons for Prosthetic Rejection by Children With Unilateral Congenital Transverse Forearm Total Deficiency
Reasons for Prosthetic Rejection by Children With Unilateral Congenital Transverse Forearm Total Deficiency
复制标题
单侧先天性前臂横行完全缺失儿童拒绝假肢的原因
DOI：
10.1097/jpo.0b013e3180421539
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发表时间：
2007
期刊：
影响因子：
--
通讯作者：
M. James
中科院分区：
文献类型：
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作者：
L. Wagner;A. Bagley;M. James
多达一半患有单侧先天性前臂横臂全缺陷症(UCTFTD)的儿童选择不戴假体。在一项多中心研究中，对489名2至20岁患有UCTFTD的儿童和年轻人及其父母进行了满意度、生活质量和功能测试。在接受测试的人中，168人(34%)选择不戴假肢。受试者和父母被问到一个开放式的问题：不戴假肢的原因是什么？并被允许做出不止一次的回应。在135名选择不戴假肢的受试者中，回答问题的人中，给出最多的原因(53%)是假肢没有帮助功能。49%的人报告说，他们不再戴假肢是因为假体不舒服。目前，UCTFTD儿童的上肢假体管理存在争议，一些临床医生主张需要假体来完成双侧手的任务，特别是在正常发育的方案中。没有戴假体的儿童的反应可能有助于从业者重新评估假体角色，并有可能改进假体选择。
As many as half of children with unilateral congenital transverse forearm total deficiency (UCTFTD) choose not to wear a prosthesis. In a multicenter study, 489 children and young adults aged 2 to 20 years with UCTFTD and their parents were tested for satisfaction, quality of life, and function. One hundred sixty-eight (34%) of those tested had chosen not to wear a prosthesis. Subjects and parents were asked the open-ended question “What are the reasons for not wearing a prosthesis?” and were allowed to give more than one response. Of the 135 subjects who had chosen not to wear a prosthesis and who responded to the question, the reason most frequently (53%) given was that the prosthesis did not help function. Forty-nine percent reported they stopped wearing it because the prosthesis was uncomfortable. Currently, upper-extremity prosthetic management for children with UCTFTD is a matter of controversy, with some clinicians advocating the need for prostheses to accomplish bilateral hand tasks, particularly in the scheme of normal development. Responses from children who do not wear a prosthesis may aid practitioners in re-evaluating the prosthetic role and potentially improve prosthetic options.